Share Your World: April 10, 2017

Share Your World: April 10, 2017

This will be a weekly post of the most random of random questions to answer- to share my world! Thanks to Cee’s blog for being the brainchild behind this!

Have you ever participated in a distance walking, swimming, running, or biking event? Tell your story. Well, I suppose it wasn’t a “distance” event in terms of how that term is usually used. But in March 2015, I took part in the 2nd Annual Worldwide EndoMarch in Washington D.C., an event that also occurred on the same day in dozens of cities throughout the world. This event raises awareness for endometriosis, a painful condition which affects 1 in 10 women worldwide, which I happen to suffer from. The march itself is fairly short, given the degree of pain many of the women are in. I haven’t been able to participate the past two years for other health reasons, but the one time I went was amazing! I did not know the ladies I’m pictured with below before the march, but we found each other as members of our home state and marched together!

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Name one thing not many people know about you. Wearing awareness gear for my chronic illnesses makes me feel better about myself.

What is your favorite flower? I know it’s cliche, but roses! 🌹🥀 I have no idea why. I especially love yellow roses, though. My husband always makes sure there’s a vase of roses for me on the dining room table.

Things I want to have in my home (paintings, hot tubs, book cases, big screen tv etc) As many book cases as can possibly fit. With plenty of books to fill the shelves with, of course.

Optional Bonus question: What are you grateful for from last week, and what are you looking forward to in the week coming up? I’m grateful that I got five loads of laundry done on Saturday. But I paid for it dearly yesterday, flaring like mad and spending 18 hours in bed.

I’m looking forward to another week of absolutely no responsibilities. And it’s Holy Week! Praise the Lord! 🙏🏻

💛ribbonrx

0 thoughts on “Share Your World: April 10, 2017

  1. I had no idea endometriosis has became so “known” that there are walks and organizations. I suffered from the time I was teenager, but “back then” they had no idea what or why(1970’s) I was happy to have a hysterectomy at age 42 which gave me back a life. I hope with the advances in medicine you are able to suffer less.

    1. I’m so glad your hysterectomy helped you, especially since it only helps some women and not others, as it’s not a cure for endo at all. I was only diagnosed in 2014 (although looking back I’d actually been suffering since around 2000), and it seems like that’s around the time the big push in awareness started. Organizations have been founded, celebrities are coming out with their stories, surgical fellowships are being established to train quality surgeons in performing excision surgery. It’s still very much an under-recognized and under-diagnosed disease, though. Misinformation is rampant, even among practicing physicians, and so many women have inadequate and just plain bad treatment because there are so few specialist surgeons. I was lucky to have excision surgery with one of the best in the world (not joking) and have been endo free ever since. I still have pain, probably because of changes that happen to the nerves when pain becomes chronic, but it’s nothing like what it was when I was bedridden from it! So I am lucky and blessed. 😊

      1. I am so glad for you. I think only someone who has suffered from it can really understand how debilitating it is. I had the top surgeon at one of the best NYC hospitals- it was a 4 hour surgery- all reproductive organs were removed and he removed all the endo that had attached itself to everything else. It changed my life.

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