A Quality-of-Life Update

I guess it’s been awhile since I’ve written a real post. Since it’s Endometriosis Awareness Month, I’ve been trying to reblog my better endo-related posts to raise awareness at a time when it’s most important. You can check out my new endo-specific page here, with information, expanding resources, and links to my blog posts. It’s pretty and has that new-page smell! 😊🎗

I guess, when it comes down to it, I’ve been using this month to hide. From myself, from the world. Some good things and some not-so-good things have happened, which you would know if you read any of my weekly Monday “Share Your World” posts. (But the vast majority of people who read those are people who don’t actually know me, so what do the finer details of my life matter to them?)

I’m on this merry-go-round that happens to be a roller coaster at the same time. And I really want to get off it so I can puke (no, really, I am actually uncomfortably nauseous right now, but it’s become a constant part of my life, too, so whatever.) Or at least purge…something. Continue reading “A Quality-of-Life Update”

Nocturnal Musings #19: The Things You Learn

I’m awake since I feel a bit sick right now. Nausea has become a fairly common occurrence during my days now, likely from all the salt tablets I’m ingesting…and all the food I’m not ingesting. I really don’t care, either.

So, it’s been a bit since I really updated at all because I’ve been reblogging my endometriosis-related posts this month to spread awareness. But what else have I been up to? Continue reading “Nocturnal Musings #19: The Things You Learn”

Share Your World- February 6, 2017

This will be a weekly post of the most random of random questions to answer- to share my world! Thanks to Cee’s blog for being the brainchild behind this!

Regarding your fridge, is it organized or a mess inside? An absolute mess. Ever play Tetris with food? Continue reading “Share Your World- February 6, 2017”

50 Questions You’ve Never Been Asked

I love fun stuff like this. It’s distracting me from the hell hole that is my life lately. Thanks Dangerously Normal Spoonie for the idea!

1. What’s your favorite candle scent? North Pole from Yankee Candle.

img_0906
Look how he is not touching her midriff. Such a gentleman!

2. What female celebrity do you wish was your sister? Emma Watson

3. What male celebrity do you wish was your brother? Tom Hiddleston (seriously, he’s only four years older than me.)

4. How old do you think you’ll be when you get married? I was 24 when I got married, which is about how old I expected I would be.

5. Do you know a hoarder? Not as bad as on the show, but my husband is definitely a hoarder.

6. Can you do a split? Yes. I’ll have you know I haven’t stretched in two years and didn’t before taking these pictures just now.

7. How old were you when you learned how to ride a bike? I think about five?

8. How many oceans have you swam in? Umm…Atlantic, Caribbean, Mediterranean, and Adriatic. So four.

9. How many countries have you been to? I think eight…(excluding the U.S.) Canada, Honduras, France, Italy, Monaco, (is Monaco its own country?) Germany, United Kingdom (including England, Wales, and Northern Ireland), Republic of Ireland.

10. Is anyone in your family in the army? Nope.

11. What would you name your daughter if you had one? Alexis Ruth

12. What would you name your son if you had one? Jacob Daniel

13. What’s the worst grade you got on a test? F. Very, very F. (In the apt words of one of my uncle’s college professors, “Oh, you don’t get F, you get F minus!”)

14. What was your favorite TV show when you were a child? Adventures in Wonderland and Saved by the Bell

15. What did you dress up as on Halloween when you were eight? That would have been second grade…a black cat.

16. Have you read any of the Harry Potter, Hunger Games or Twilight series? Yes. I loved and need to reread Harry Potter. I need to finish Hunger Games (only finished the first book). And I need to set fire to Twilight.

17. Would you rather have an American accent or a British accent? British. It’s in my royal heritage, you know.

18. Did your mother go to college? Yes.

19. Are your grandparents still married? They’re dead.

20. Have you ever taken karate lessons? No

21. Do you know who Kermit the frog is? Of course. If you don’t, I don’t want to imagine how tragic your childhood was.

22. What’s the first amusement park you’ve been to? Seabreeze! (Twelfth oldest operating amusement park in the world, fourth oldest in the U.S.)

23. What language, besides your native language, would you like to be fluent in? Spanish

24. Do you spell the color as grey or gray? Gray

25. Is your father bald? Getting there.

26. Do you know triplets? Not personally.

27. Do you prefer Titanic or The Notebook? Neither, although if I had to pick one, The Notebook.

28. Have you ever had Indian food? Who hasn’t?

29. What’s the name of your favorite restaurant? Revolution Pizza (best gluten free pizza anywhere!)

30. Have you ever been to Olive Garden? Too many times.

31. Do you belong to any warehouse stores (Costco, BJ’s, etc.)?Sam’s Club

32. What would your parents have named you if you were the opposite gender? Kevin Charles

33. If you have a nickname, what is it? Bootie

34. Who’s your favorite person in the world? My hubby, David.

35. Would you rather live in a rural area or in the suburbs? Suburbs.

36. Can you whistle? Eh, not really.

37. Do you sleep with a nightlight? We have one over by the bathroom door that we put there while I was recovering from knee surgery so if I needed to crutch to the bathroom in the middle of the night, I could see where I was going. We just never got rid of it. But it’s pretty much hidden by a dresser, so you can’t see it until you’re right in front of the bathroom door.

38. Do you eat breakfast every morning? Nope. Stopped doing that when I was 12.

39. Do you take any pills or medication daily? HAHAHAHAHAHAHAHAHAHAHAHAHAHA! Yes. Ends up being about 30 pills daily.

40. What medical conditions do you have? Sigh…Endometriosis, adenomyosis, celiac disease, infertility, major depressive disorder, anxiety, episodic migraines, hypothyroidism, pituitary tumor (prolactinoma) that was surgically removed and had better not come back, left internal carotid artery aneurysm, dysautonomia, orthostatic intolerance, moderate hypovolemia (I don’t have enough blood, but I’m not anemic), and “very severe” venous pooling, both of which indicate POTS (postural orthostatic tachycardia syndrome). And I might have Ehlers-Danlos Syndrome; I have an appointment with a geneticist in a few weeks.

41. How many times have you been to the hospital? I work at one and trained in many, so I’m going to assume this question means as a patient. So then…15, to the best of my knowledge, including emergency room visits, admissions, and procedures or surgeries. That excludes appointments.

42. Have you ever seen Finding Nemo? What person in their 30s hasn’t!?

43. Where do you buy your jeans? New York and Company

44. What’s the last compliment you got? A comment from a lovely reader on my blog: “Thank you so much for such an informative post on brain fog. I know I get it a lot and it drives me bonkers. Reading your experience makes me feel less alone!”

45. Do you usually remember your dreams in the morning?  Most of the time.

46. What flavor tea do you enjoy? Lady Gray and English Breakfast.

47. How many pairs of shoes do you currently own? Too many. I only wear about seven of them.

48. What religion will you raise your children to practice? Jesus is my Savior, not my religion.

49. How old were you when you found out that Santa wasn’t real? I think I was about 7 or 8.

50. Why do you have a Tumblr? I don’t. I just copied this list from someone else!

💛ribbonrx

Can’t I Just Be “Whelmed”?

via Daily Prompt: Overwhelming

It doesn’t take a psychiatrist to figure out that right now my life is exceptionally overwhelming. I thought I’d gone through a lot last year, which I did. Unfortunately, it appears, at least so far, that 2017 is turning out to be a real stinker as well. And we’re only a month in!

Maybe listing everything I’m overwhelmed about will help. I’ll try to make this as coherent as possible. However, between this perpetual brainfog and the fact that as of right now, I’ve been awake for 28 hours (couldn’t sleep due to pain and just feeling crummy in general…plus I wanted to finish a book I was reading), it may be a little bit off. Continue reading “Can’t I Just Be “Whelmed”?”

Resist: Don’t Let Them Tell You No

via Daily Prompt: Resist

Unlike most people who will write about politics for today’s prompt, I hate politics, so I will avoid talking about it on my blog. No, instead, I’m going to write about something I bring up occasionally and is so important for those who are chronically ill: patient advocacy.

Much of my experience with advocating for my own healthcare is told in this blog post, when I sought out a second opinion for my endometriosis to be treated by literally one of the best surgeons in the world. But I have had to pull myself up by my own bootstraps again lately when it comes to getting the care I deserve. (Because healthcare is a right, not a privilege. Ok, some politics, I guess.) Continue reading “Resist: Don’t Let Them Tell You No”

2016, In the Style of Personal Journals: January

I’m going to try something a little different here. Last year was a rough year for me due to medical problems I had. I poured out my heart and soul into my personal journals, which were my lifeline keeping me somewhat grounded. To give you an idea of what it was really like to go through all that I did, the rest of this entry is only direct quotes from my journals. I plan to do this every month this year.

Welcome to the inside of my head and heart. Be warned, this is honest and raw.

Trigger warning: self-harm, depression, infertility

January 1, 2016: “Well, here’s to hoping for a good 2016. I hope it’s better than last year.” Continue reading “2016, In the Style of Personal Journals: January”