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Tag: invisible illness

With Water and Fortitude

With Water and Fortitude

Water and fortitude. That’s how you choke down potassium chloride tablets. Seriously, these things are huge. Alas, another medication has been added to my daily arsenal, although hopefully only temporarily. And a different new medication has been added full time for now. I finally got those 15 tubes of blood drawn and, as I knew would happen, my potassium is low, because me. And because it’s a side effect of the Florinef that I was fully expecting, even after only two weeks…

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Abandoning the Dream

Abandoning the Dream

Seven years ago, I graduated from pharmacy school with my doctor of pharmacy degree. Seven years ago, I moved to a new city as a newlywed, fresh back from our honeymoon. And seven years ago today, June 14th, I started my career as a pediatric pharmacist. My dream job. And now I wonder…was there even a point? We started off as children. Teenagers right out of high school dedicating ourselves to a highly esteemed profession, one which consistently ranks very high among the…

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Is My Illness My Fault?

Is My Illness My Fault?

For me, 2016 was the year of the surgeries and bizarre diagnoses. Three surgeries, to be exact, spanning over a period of four months. Once the surgeries were over, I thought that once I had an adequate recovery period, I would be back to normal. I’d be able to return to work, from which I’d had to take an extended leave of absence, and I could put the entire year behind me as a gargantuan fluke. But it was not…

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Fighting Back With Love

Fighting Back With Love

Recently, I wrote a post that ended up being quite popular within the dysautonomia community. It’s actually been the most popular post I’ve written this year. I honestly have no idea why; I have read it over and over again and can’t seem to find what is so remarkable about it. When I asked my husband, even he said there was nothing profound about it. (Thanks, honey; I can always count on you to be honest. 😊) But whatever it…

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When Your Depression Is Invalidated

When Your Depression Is Invalidated

One of the worst feelings you can experience as a chronically ill person is invalidation. It’s not necessarily that others don’t believe you (although that is also a tremendous problem and a discussion for another time), but that they either don’t see or don’t understand how much your illness(es) impact your daily life. Especially when mental health plays a role in your battles. And what makes it even more frustrating? When that invalidation comes from healthcare professionals. When, to their…

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The Unpredictability of POTS

The Unpredictability of POTS

I was diagnosed with postural orthostatic tachycardia syndrome (POTS) about four months ago. (Is that all? Really? *checks calendar* Blast it all. This has been the longest four months of my life.) In a stroke of luck, my diagnosis came only a month or so after the onset of symptoms, which I inadvertently described some of here. But part of me wonders if this wasn’t the beginning, albeit still only a few weeks before things really took a more permanent turn…

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Share Your World: May 22, 2017

Share Your World: May 22, 2017

This will be a weekly post of the most random of random questions to answer- to share my world! Thanks to Cee’s blog for being the brainchild behind this! What one thing have you not done that you really want to do? Have children. This is a painful struggle we’ve been dealing with for over three years due to major health issues on my part.

Share Your World: May 8, 2017

Share Your World: May 8, 2017

This will be a weekly post of the most random of random questions to answer- to share my world! Thanks to Cee’s blog for being the brainchild behind this! When you’re alone at home, do you wear shoes, socks, slippers, or go barefoot? Well, I always have a pair of socks on. Since I was diagnosed with POTS in January, I’ve worn compression socks every day. (It appears I have 17 pairs of fun-colored compression socks.) Not sure how the…

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Better? Think Again…

Better? Think Again…

via Daily Prompt: Better Sometimes I have this weird gift of forethought. Either that or just really good hunches. If I look back through my journals, there are multiple instances in which I predicted last year that I had a brain tumor. What are the chances, right? Yet, I turned out to be correct. Later last year, as I prepared for my brain surgery, everyone was so excited because I was going to get “better.” The surgery would be a…

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She Told Me I Was Beautiful

She Told Me I Was Beautiful

And now she’s dead. Back up. This post contains discussions of untimely death and suicide. Please stay safe and steer clear if these subjects may be triggering for you. One of the interesting things about having chronic illness(es) is how your friendships change. In many unfortunate cases, people who were once your friends fade into the background. Sometimes it’s because they’re uncomfortable being around someone who is ill. Or maybe they don’t like the new version of this person they…

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