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Tag: invisible illness

Nocturnal Musings #25: The Truth About My Pain

Nocturnal Musings #25: The Truth About My Pain

The past few weeks have been rough for me come nighttime. Things are all right during the day for the most part. But once midnight rolls around, pain comes out to play. I feel like this chick is sneaking around somewhere. If anyone sees her, stake her for me, will you? (After I burn for EVER referencing the trash that is Twilight on my blog…*face palm of shame*) For the past two weeks or so, I’ve been suddenly set upon…

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Reading Wrap-Up: January 2018 Part Two

Reading Wrap-Up: January 2018 Part Two

Reading wrap-ups are a new thing to me. I haven’t done a reading wrap-up before this month, but I always enjoy reading everyone else’s. Plus, even though I keep track of my reading on Goodreads, this may help motivate me towards my 2018 reading goal of 50 books! Based on how this month went, I think I may need to modify that goal in the upwards direction. I don’t do monthly TBRs because I’m ridiculously spontaneous when it comes to picking…

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Two Frightening Medication Side Effects I’ve Experienced

Two Frightening Medication Side Effects I’ve Experienced

I’ve taken a number of medications throughout my life. Currently, I take 17 different medications to control the symptoms of my numerous chronic illnesses. It therefore stands to reason that I’ve experienced side effects from time to time. Some side effects are expected; opioid pain medications cause constipation, midodrine gives me headaches, aspirin causes frequent nosebleeds and my skin to occasionally blossom into bruises when I get clumsy. But some side effects are unexpected and can be downright frightening in…

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Dysautonomia: Products That Saved Me In 2017

Dysautonomia: Products That Saved Me In 2017

As far as health disasters go, 2017 turned out much better than 2016. No surgeries, no emergency room visits, one scan, and one procedure this year! (And those were planned.) Huzzah! However, that doesn’t mean the year was much better to get through. Virtually all of my other chronic illnesses took a back seat to symptom management of dysautonomia, specifically Postural Orthostatic Tachycardia Syndrome (POTS). Dysautonomia is one of those conditions that affects everyone differently. (Though in reality, most chronic illnesses share…

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Pituitary Tumors and Mental Health

Pituitary Tumors and Mental Health

Pituitary tumors are not uncommon. In fact, up to 1/4 of brain tumors are pituitary tumors. These tumors are almost always benign, but can cause a wide range of symptoms depending on whether they are functioning (secrete hormones) or nonfunctioning (don’t secrete hormones). Symptoms depend on which hormone is being oversecreted and/or what structure(s) the tumor is pressing on, such as the optic nerve or pituitary stalk. Simple blood tests can be indicative of hormone oversecretion. Imaging, specifically MRI, can…

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The Year After Brain Surgery

The Year After Brain Surgery

A year ago today, a tumor was removed from my head. The four-hour brain surgery itself was uneventful. I woke up pretty crabby afterwards. But when you go into the OR feeling fine and wake up with the world’s worst headache and sore throat and you can’t breathe through your nose or smell anything? Not to mention the constant run of blood and gunk draining out of your nose and down your throat, enough to make you unpleasantly sick. That’s enough…

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Passing Time With A Chronic Illness

Passing Time With A Chronic Illness

When you have a chronic illness (or two, or three) sometimes you find yourself with some down time. Not necessarily because you chose this, but because your body decided for you. This is when it helps to have a hobby (or two, or three) to occupy yourself with. Ah, the flare. Every chronic illness has these days. You may find yourself holed up in the bathroom, flat on your back in bed, or huddled under a blanket on the couch. Flares…

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Six Things I Wish I’d Known About Endometriosis

Six Things I Wish I’d Known About Endometriosis

If you’ve followed my blog for any period of time, you’re likely familiar with the fact that I have endometriosis. To be honest, of all my chronic illnesses, it’s the one I feel most passionate about. Despite being a very common condition, it’s not one for which education is exactly stellar. It’s a disease most people have never heard of. When a diagnosis of endometriosis is given to a woman, most of the time she has no idea what it is…

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Backsliding: POTS Edition

Backsliding: POTS Edition

Backsliding. A fairly common problem among certain chronic illnesses. This phenomenon occurs so often in the world of POTS that when it happens I can barely contain myself. I am completely over this month. I just want to take it and throw it in the trash, after stomping on it a few times. Thank goodness there’s only a week left. The Potassium Around the beginning of the month, I started on potassium supplementation. Why?

With Water and Fortitude

With Water and Fortitude

Water and fortitude. That’s how you choke down potassium chloride tablets. Seriously, these things are huge. Alas, another medication has been added to my daily arsenal, although hopefully only temporarily. And a different new medication has been added full time for now. I finally got those 15 tubes of blood drawn and, as I knew would happen, my potassium is low, because me. And because it’s a side effect of the Florinef that I was fully expecting, even after only two weeks…

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