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Tag: POTS

Sick Beauty Standards

Sick Beauty Standards

“But you don’t look sick.” A statement so many people with chronic illness are tired of hearing. Say that to someone with a chronic illness and what they’ll really want to do is slap you upside the head and say, “That’s because I spent 20 minutes perfecting my face this morning!” Honestly, we all know makeup can turn anyone into a beauty; that’s what it was invented for! A little foundation can hide some blemishes and even out your skin…

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With Water and Fortitude

With Water and Fortitude

Water and fortitude. That’s how you choke down potassium chloride tablets. Seriously, these things are huge. Alas, another medication has been added to my daily arsenal, although hopefully only temporarily. And a different new medication has been added full time for now. I finally got those 15 tubes of blood drawn and, as I knew would happen, my potassium is low, because me. And because it’s a side effect of the Florinef that I was fully expecting, even after only two weeks…

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Share Your World: August 7, 2017

Share Your World: August 7, 2017

This will be a weekly post of the most random of random questions to answer- to share my world! Thanks to Cee’s blog for being the brainchild behind this! What was the last URL that you bookmarked or saved? The login page to what will be my new, updated blog! I am transferring to a self-hosted site. It’s time to expand my blog and bring it to a higher level and the good people at WordPress are doing the full transfer…

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Planning Through the Brain Fog

Planning Through the Brain Fog

When you have a medical condition like POTS (Postural Orthostatic Tachycardia Syndrome), which affects the blood flow to your brain, or even conditions like fibromyalgia or Lyme Disease, using your brain to its fullest potential becomes a daunting and often maddeningly frustrating task. As I’ve written in the past, brain fog isn’t the occasional forgetfulness that us sleep-deprived adults have to deal with. And it’s not just “getting old” (I’m 31, for heaven’s sake!) Sometimes I can’t even remember things…

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Nocturnal Musings #24: 4 am Pizza

Nocturnal Musings #24: 4 am Pizza

You do what you have to do. Am I right, POTSies? This has been an exceptionally bad week. So much so that I think I’ve spent most of it in bed. I say I think because I’m having a difficult time remembering right now. I’d like to be lying down in bed, but David is so exhausted from working both his regular job and security for the Pro Football Hall of Fame events over the past several days that he’s…

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Inside the Mind of a Sick Person

Inside the Mind of a Sick Person

“What do sick people think about? How do you know when you start to be a sick person?” This statement by author Nina Riggs in her memoir, The Bright Hour, was spoken when she woke up one morning shortly after she was diagnosed with breast cancer. When I read it, it gave me pause. I tried to remember if I had ever had a similar thought and couldn’t locate one anywhere in my memory, although that’s not saying much nowadays….

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An Exercise Plan For A POTSie

An Exercise Plan For A POTSie

Last week was another step forward in working towards some sort of improved quality of life. Meaning, I finally had that cardiac rehab (aka exercise) evaluation that I’ve been putting off. Since Dr. Wilson made such a good case for it at my appointment with him, I knew I had to try. I felt a bit crappy in the morning, so I’m glad my dad was here to be able to take me. We weren’t sure how much the test…

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Share Your World: July 17, 2017

Share Your World: July 17, 2017

This will be a weekly post of the most random of random questions to answer- to share my world! Thanks to Cee’s blog for being the brainchild behind this! What is your favorite cheese? As my husband’s family hails from Wisconsin, we have an entire drawer of our refrigerator devoted solely to cheese. And when I say drawer, I mean the extra drawer in between the French doors of the fridge and the pullout freezer, so it’s as wide as the…

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Coping with POTS

Coping with POTS

I was recently provided with a very well-written article about POTS (postural orthostatic tachycardia syndrome) by a fellow POTSie who sees the same specialist I do. The article was written by the specialist, his nurse, and some of his patients who are in the healthcare field. Please feel free to share the article with friends and family members! 😊 While I enjoyed all aspects of the article, the part that surprised me the most, mainly due to the fact that…

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A POTSie Life For Me

A POTSie Life For Me

Yesterday was a very overwhelming day, but I’m going to try my best to make it somewhat comprehensible. After six months of waiting (seriously, I scheduled this appointment in January), I finally had my appointment with Dr. Wilson. He’s a neurologist who specializes in POTS and has patients come from all over the country to see him. And now it was finally my turn!

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