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Category: Turquoise for dysautonomia

Nocturnal Musings #23: Out of Hell

Nocturnal Musings #23: Out of Hell

I have to go there today. That place. That hospital of which I am deeply afraid. For a follow-up visit with my endocrinologist to check my prolactin to make sure my tumor is still in check, even though my MRI from two months ago (7 months post-op) was clear. I can already smell the smells. Starbucks, of all things. Alcohol wipes. Plastic tubing. Fluid bags from patients going for walks. I can smell a TPN fifty yards away. Occupational hazard. I can…

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Share Your World: June 5, 2017

Share Your World: June 5, 2017

This will be a weekly post of the most random of random questions to answer- to share my world! Thanks to Cee’s blog for being the brainchild behind this! What’s your strongest sense? Smell. (I must have been a dog or cat in a past life.) Many of my memories are based on smells. It was so weird after my brain surgery when I couldn’t smell anything at all for a week or two because the tumor was removed through my nose….

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Sunday Stealing: The Procrastination Tool

Sunday Stealing: The Procrastination Tool

Greetings, one and all! Time to have some fun! I picked up these lovely questions down South at the McClendon Villa! Originally, however, they were the loot of Sunday Stealing! Check them both out! But as for me… 1. What is your favorite sit-down restaurant? This is a tricky one. I was diagnosed with celiac disease in 2012 and in this area of the country, it’s actually quite challenging to find a restaurant that can safely cater to a gluten free…

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When Your Depression Is Invalidated

When Your Depression Is Invalidated

One of the worst feelings you can experience as a chronically ill person is invalidation. It’s not necessarily that others don’t believe you (although that is also a tremendous problem and a discussion for another time), but that they either don’t see or don’t understand how much your illness(es) impact your daily life. Especially when mental health plays a role in your battles. And what makes it even more frustrating? When that invalidation comes from healthcare professionals. When, to their…

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Share Your World: May 29, 2017

Share Your World: May 29, 2017

This will be a weekly post of the most random of random questions to answer- to share my world! Thanks to Cee’s blog for being the brainchild behind this! What is the most famous landmark or building you have ever seen? I have no idea. I’ve been to Europe, the U.K., Ireland, and all over the U.S. I’ve seen more famous landmarks than I could probably name. But if I had to pick one, even though I have an intense…

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The Unpredictability of POTS

The Unpredictability of POTS

I was diagnosed with postural orthostatic tachycardia syndrome (POTS) about four months ago. (Is that all? Really? *checks calendar* Blast it all. This has been the longest four months of my life.) In a stroke of luck, my diagnosis came only a month or so after the onset of symptoms, which I inadvertently described some of here. But part of me wonders if this wasn’t the beginning, albeit still only a few weeks before things really took a more permanent turn…

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Share Your World: May 22, 2017

Share Your World: May 22, 2017

This will be a weekly post of the most random of random questions to answer- to share my world! Thanks to Cee’s blog for being the brainchild behind this! What one thing have you not done that you really want to do? Have children. This is a painful struggle we’ve been dealing with for over three years due to major health issues on my part.

Rebellion Gone Wrong

Rebellion Gone Wrong

I’m not quite sure I’ve gone this long without updating my blog before, even after my multiple surgeries last year. This week has been a weird one, though, and I just haven’t felt like writing. Probably because of my rebellion that kind of ended up going sideways. Hubby was out of town presenting at an emergency medicine conference in Orlando, so I’ve been alone with the cats all week. They’re used to me being home all the time, but not…

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Share Your World: May 8, 2017

Share Your World: May 8, 2017

This will be a weekly post of the most random of random questions to answer- to share my world! Thanks to Cee’s blog for being the brainchild behind this! When you’re alone at home, do you wear shoes, socks, slippers, or go barefoot? Well, I always have a pair of socks on. Since I was diagnosed with POTS in January, I’ve worn compression socks every day. (It appears I have 17 pairs of fun-colored compression socks.) Not sure how the…

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