An Introduction to ribbonrx.com

An Introduction to ribbonrx.com

Excuse My Dust!!!

I have now transferred ribbonrx.com over to a self-hosted site, thanks to smart people doing things I don’t understand because I don’t speak code. There are still some hiccups I’m trying to iron out. In the meantime, if you experience any of these growing pains with the blog, I’d appreciate it if you could bring it to my attention either by commenting below or using the contact form available in the menu at the top of the page. I appreciate your patience as I work to build a better blog!

Please note: If you normally follow my blog through the WordPress.com Reader, from now on you need to subscribe to my posts via email (see the sidebar). Please sign up so you don’t miss any content!

๐Ÿ’›ribbonrx

Hi there! Welcome to my blog, ๐Ÿ’›ribbonrx! I thought I would do a brief introduction so you know what you can expect to find here.

The goal of this blog is to give a voice to issues that are near and dear to my heart (meaning, issues I suffer from) that need a louder voice. Topics covered include:

  • Endometriosis (visit Yellow for Endometriosis, my specific page for endo information, resources, and links to my blog posts)
  • Adenomyosis
  • Celiac disease
  • Depression *some trigger warnings provided on these posts*
  • Self harm *trigger warnings provided on these posts*
  • Migraines
  • Infertility
  • Social anxiety
  • Chronic pain
  • Stigmas surrounding mental health and chronic pain
  • Pituitary tumors (specifically prolactinomas)
  • Dysautonomia
  • Postural Orthostatic Tachycardia Syndrome (POTS)
  • Ehlers-Danlos Syndrome Hypermobility Type (hEDS) or, as my geneticist said, an “unspecified connective tissue disorder,” so perhaps on the range of Hypermobility Spectrum Disorders (HSD) based on the newly released 2017 diagnostic criteria.
  • Being a spoonie

I also randomly blog about cats, books, dance, and other fun things.

๏’›A man and woman wearing graduation cap and gown with doctorate hoods holding hands walking down a sidewalk away from the camera. The grass is green and the sky is clear blue.

I hope here you find support and helpful information regarding these illnesses. Welcome and enjoy!

๐Ÿ’›ribbonrx

 

0 thoughts on “An Introduction to ribbonrx.com

  1. You are incredible! I have all of the same illnesses..plus Crohn’s Disease, chronic migraines, mixed connective tissue disease & then some..I feel such a kinship with you! I’m also a patient advocate & health educator writing a book on the spoonie life–I’d LOVE to include you!

    1. Wow, thank you so much! Sounds like we have a lot in common, for the most part. I’d be honored to help you out with your book in whatever way you want! Thank you!

  2. *squee* I nominated you for the One Lovely Blog Award! See my post from today’s date for the info and rules – if you do that kind of thing. Thank you for such an incredibly informative blog. <3 ~Lisa

  3. Laura, you are a talented writer. Consider more writing opportunities, short stories, children’s books. You will be helping others in ways yet unknown. You would also be good at editing pharma journals or English as a second language scientific writing and would receive financial remuneration for your work. The opportunities await someone with your skill set. Seek out some of the opportunities to serve on editorial boards or a reviewer for Pharmaceutical journals. You have the requisite knowledge and writing skill which is a needed combination.
    It would also keep you current on the literature in your area of expertise. You are valued ! Pam

  4. Just pinned your fantastic article about seeing Dr Wilson.
    That was a great article. I wanted to leave info on low dose naltrexone 4.5 mg. I am certain that you are aware of
    it. I recently heard Dr Leonard
    Weinstein a gastroenterologist
    in St Louis be interviewed on
    LDN Radio UK & say he gives
    LDN 4.5 mg to some of his
    14 POTS patients. He has a special interest in it from a
    relative of his. I am on ldn 4.5 mg for fibromyalgia from Jared
    Younger’s LDN/Fibro study
    @ Stanford- now @ UAB.
    God Bless You

    1. Thank you for that information! I’ve heard of LDN in other conditions (I’m a pediatric pharmacist), but not so much in POTS. I know fibro is different than POTS, but do you find that the LDN helps you? Best wishes to you! ๐Ÿ™‚

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