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Tag: Partial dysautonomia

The Unpredictability of POTS

The Unpredictability of POTS

I was diagnosed with postural orthostatic tachycardia syndrome (POTS) about four months ago. (Is that all? Really? *checks calendar* Blast it all. This has been the longest four months of my life.) In a stroke of luck, my diagnosis came only a month or so after the onset of symptoms, which I inadvertently described some of here. But part of me wonders if this wasn’t the beginning, albeit still only a few weeks before things really took a more permanent turn…

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Share Your World: May 22, 2017

Share Your World: May 22, 2017

This will be a weekly post of the most random of random questions to answer- to share my world! Thanks to Cee’s blog for being the brainchild behind this! What one thing have you not done that you really want to do? Have children. This is a painful struggle we’ve been dealing with for over three years due to major health issues on my part.

Share Your World: May 8, 2017

Share Your World: May 8, 2017

This will be a weekly post of the most random of random questions to answer- to share my world! Thanks to Cee’s blog for being the brainchild behind this! When you’re alone at home, do you wear shoes, socks, slippers, or go barefoot? Well, I always have a pair of socks on. Since I was diagnosed with POTS in January, I’ve worn compression socks every day. (It appears I have 17 pairs of fun-colored compression socks.) Not sure how the…

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Better? Think Again…

Better? Think Again…

via Daily Prompt: Better Sometimes I have this weird gift of forethought. Either that or just really good hunches. If I look back through my journals, there are multiple instances in which I predicted last year that I had a brain tumor. What are the chances, right? Yet, I turned out to be correct. Later last year, as I prepared for my brain surgery, everyone was so excited because I was going to get “better.” The surgery would be a…

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Give Your Heart a Break

Give Your Heart a Break

One more time around the sun, one more time passing through National Infertility Awareness Week as an unintentionally childless woman. I guess you could say this is my third time. It’s an understatement to say that a lot has gotten in the way of my attempts to become a mom. In 2014, not long after we had starting trying to get pregnant, my battle with endometriosis took the forefront. Within a span of six months, I was hospitalized, diagnosed, and…

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Share Your World: April 24, 2017

Share Your World: April 24, 2017

This will be a weekly post of the most random of random questions to answer- to share my world! Thanks to Cee’s blog for being the brainchild behind this! Wanting something to quench your thirst, what would you drink? This is an interesting question, given the fact that I have POTS, which means I take in about 4-5 liters of fluid a day just to be able to stand up. Most of that is Gatorade, with a little bit being…

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A Good Thing

A Good Thing

That place still traumatizes me. Wait, back up. I should start at the beginning. Yesterday it was finally time for my 7-month MRI following my brain tumor removal last September (and my 7th lifetime MRI at that!) My mom came down a few days ago to spend some time with me while my husband was out of town, and to drive me to my appointments. I was already stressed out about the day because of the timing. My MRI was…

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Things We Lost in the Fire

Things We Lost in the Fire

“Things we lost to the flame Things we’ll never see again All that we’ve amassed Sits before us, shattered into ash…” Things We Lost in the Fire (Bastille)   As Esther Smith said in her excellent book, When Chronic Pain and Illness Take Everything Away, “Grief is the process by which we actively release all that we feel, question, and remember at the feet of God and the people He has placed in our lives.” At the end of the second…

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Share Your World: April 10, 2017

Share Your World: April 10, 2017

This will be a weekly post of the most random of random questions to answer- to share my world! Thanks to Cee’s blog for being the brainchild behind this! Have you ever participated in a distance walking, swimming, running, or biking event? Tell your story. Well, I suppose it wasn’t a “distance” event in terms of how that term is usually used. But in March 2015, I took part in the 2nd Annual Worldwide EndoMarch in Washington D.C., an event…

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Nocturnal Musings #21: A Conversation

Nocturnal Musings #21: A Conversation

A lot of people find it hard to believe that God still speaks to us today. But He does. Not in the way He used to in ancient times to the Prophets; if I heard a deep voice bellow my name out of thin air, I think I’d have a heart attack right then and there! But if you are listening and honestly seeking Him, you can hear Him if He has something to say. My former youth pastor, John,…

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