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Tag: Chronic illness

Pituitary Tumors and Mental Health

Pituitary Tumors and Mental Health

Pituitary tumors are not uncommon. In fact, up to 1/4 of brain tumors are pituitary tumors. These tumors are almost always benign, but can cause a wide range of symptoms depending on whether they are functioning (secrete hormones) or nonfunctioning (don’t secrete hormones). Symptoms depend on which hormone is being oversecreted and/or what structure(s) the tumor is pressing on, such as the optic nerve or pituitary stalk. Simple blood tests can be indicative of hormone oversecretion. Imaging, specifically MRI, can…

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The Year After Brain Surgery

The Year After Brain Surgery

A year ago today, a tumor was removed from my head. The four-hour brain surgery itself was uneventful. I woke up pretty crabby afterwards. But when you go into the OR feeling fine and wake up with the world’s worst headache and sore throat and you can’t breathe through your nose or smell anything? Not to mention the constant run of blood and gunk draining out of your nose and down your throat, enough to make you unpleasantly sick. That’s enough…

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Passing Time With A Chronic Illness

Passing Time With A Chronic Illness

When you have a chronic illness (or two, or three) sometimes you find yourself with some down time. Not necessarily because you chose this, but because your body decided for you. This is when it helps to have a hobby (or two, or three) to occupy yourself with. Ah, the flare. Every chronic illness has these days. You may find yourself holed up in the bathroom, flat on your back in bed, or huddled under a blanket on the couch. Flares…

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Six Things I Wish I’d Known About Endometriosis

Six Things I Wish I’d Known About Endometriosis

If you’ve followed my blog for any period of time, you’re likely familiar with the fact that I have endometriosis. To be honest, of all my chronic illnesses, it’s the one I feel most passionate about. Despite being a very common condition, it’s not one for which education is exactly stellar. It’s a disease most people have never heard of. When a diagnosis of endometriosis is given to a woman, most of the time she has no idea what it is…

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Backsliding: POTS Edition

Backsliding: POTS Edition

Backsliding. A fairly common problem among certain chronic illnesses. This phenomenon occurs so often in the world of POTS that when it happens I can barely contain myself. I am completely over this month. I just want to take it and throw it in the trash, after stomping on it a few times. Thank goodness there’s only a week left. The Potassium Around the beginning of the month, I started on potassium supplementation. Why?

Sick Beauty Standards

Sick Beauty Standards

“But you don’t look sick.” A statement so many people with chronic illness are tired of hearing. Say that to someone with a chronic illness and what they’ll really want to do is slap you upside the head and say, “That’s because I spent 20 minutes perfecting my face this morning!” Honestly, we all know makeup can turn anyone into a beauty; that’s what it was invented for! A little foundation can hide some blemishes and even out your skin…

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With Water and Fortitude

With Water and Fortitude

Water and fortitude. That’s how you choke down potassium chloride tablets. Seriously, these things are huge. Alas, another medication has been added to my daily arsenal, although hopefully only temporarily. And a different new medication has been added full time for now. I finally got those 15 tubes of blood drawn and, as I knew would happen, my potassium is low, because me. And because it’s a side effect of the Florinef that I was fully expecting, even after only two weeks…

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Inside the Mind of a Sick Person

Inside the Mind of a Sick Person

“What do sick people think about? How do you know when you start to be a sick person?” This statement by author Nina Riggs in her memoir, The Bright Hour, was spoken when she woke up one morning shortly after she was diagnosed with breast cancer. When I read it, it gave me pause. I tried to remember if I had ever had a similar thought and couldn’t locate one anywhere in my memory, although that’s not saying much nowadays….

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Coping with POTS

Coping with POTS

I was recently provided with a very well-written article about POTS (postural orthostatic tachycardia syndrome) by a fellow POTSie who sees the same specialist I do. The article was written by the specialist, his nurse, and some of his patients who are in the healthcare field. Please feel free to share the article with friends and family members! 😊 While I enjoyed all aspects of the article, the part that surprised me the most, mainly due to the fact that…

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A POTSie Life For Me

A POTSie Life For Me

Yesterday was a very overwhelming day, but I’m going to try my best to make it somewhat comprehensible. After six months of waiting (seriously, I scheduled this appointment in January), I finally had my appointment with Dr. Wilson. He’s a neurologist who specializes in POTS and has patients come from all over the country to see him. And now it was finally my turn!

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