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Raising Awareness About Life

Share Your World: April 24, 2017

Share Your World: April 24, 2017

April 24, 2017 ribbonrx Comments 0 Comment

This will be a weekly post of the most random of random questions to answer- to share my world! Thanks to Cee’s blog for being the brainchild behind this!

Wanting something to quench your thirst, what would you drink? This is an interesting question, given the fact that I have POTS, which means I take in about 4-5 liters of fluid a day just to be able to stand up. Most of that is Gatorade, with a little bit being water, water with a Nuun tablet, pop, or milk. But of all the beverages I drink every day, Gatorade is the most thirst-quenching for me, probably because my body craves the sodium and other electrolytes.

Complete this sentence: Never In My Life Have I…

Smoked. From a young age, I was, and still am, extremely averse to the smell of cigarette smoke, as were my mom and brother. (Dad was a bit more used to it given he worked in a newsroom.) As a family, we were once at a fast food place while traveling. We walked by a table where the occupants were smoking. Being the precocious little kiddie I was (before social anxiety shut me down), I (loudly) announced to everyone within earshot, “They’re smoking. They’re gonna die.” Haha, kids…? Back in the day when smoking was still allowed in restaurants, we always asked to sit in “non-smoking, as far away from smoking as possible.” Boy, was I thrilled when New York became one of the first states to adopt the no smoking in restaurants law!

If you could be given any gift what would it be? The best gift I could ever be given is already mine- salvation and eternal life in heaven with my Lord Jesus Christ. ??❤️

What do you do if you can’t sleep at night? Do you count sheep, toss and turn, or get up and try to do something productive? I sometimes toss and turn, depending on how close to sleep I think I am. If I feel really awake, I’ll get up and read or write in my journal.

Optional Bonus question: What are you grateful for from last week, and what are you looking forward to in the week coming up? I am most grateful for the clear MRI showing no recurrence of my brain tumor seven months out from surgery. Yay!!! ? Also, I pushed myself to walk through the hospital to my appointment, instead of using my wheelchair. This was the furthest I have walked since my POTS diagnosis. Although it was exhausting, I did it! ?

I just want to survive this week without physically destroying anything. There’s some work-related stuff going on that is stressing me out and pissing me off because some of the people at that place couldn’t find their butts if their heads were shoved up them. ? I’ll explain more at a later date, but I want everything to get sorted out first. But I have spent most of the day today going, “ARE YOU FREAKING KIDDING ME?!?!” ? I even had to take a Klonopin to calm myself down. At least I haven’t broken anything yet.

?ribbonrx

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Gray for the brain, Turquoise for dysautonomia
brain surgery, Brain tumor, Christian, dysautonomia, Gatorade, God, health, invisible illness, jesus, MRI, orthostatic intolerance, Partial dysautonomia, postural orthostatic tachycardia syndrome, POTS, Praise the lord, prolactinoma, share your world, sleeping, syw

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0 thoughts on “Share Your World: April 24, 2017”

  1. Cee Neuner says:
    April 25, 2017 at 12:35 pm

    Congrats on walking through the hospital. That must have been a marvelous moment for you. ??

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