I’m awake since I feel a bit sick right now. Nausea has become a fairly common occurrence during my days now, likely from all the salt tablets I’m ingesting…and all the food I’m not ingesting. I really don’t care, either.
I can’t predict the future. I don’t know what the Lord has in store for me. He’s started dropping hints again after a week’s silence following what happened just recently, which likely means something is going to happen again.
I’ve feared for the past year since I went on medical leave (on June 10, 2016) that this day would come. That my recovery wouldn’t happen fast enough for the almighty powers that be and that my position would be posted, Continue reading “An Existence I Can No Longer Have”
What a treat to be nominated for the One Lovely Blog Award on Valentine’s Day! Thank you spooniemom (aka Tracy) at Me, My Spoons, and I for the nomination! I am honored! Tracy has been fighting an as yet undiagnosed chronic illness for a long time. She is a true spoonie warrior! (You all need to check out her blog and her awesome Etsy store, The Spoonique Boutique! Love the candles but haven’t had a chance to try out the shower steamers or scrubs yet!)
1- Thank the person that nominated you and leave a link to their blog
2- Post about the award
3- Share seven facts about yourself
4- Nominate other people (15 at most)
5- Tell your nominees the good news
I’m a lover of Jesus. He is my everything. Without Him, I’d probably be dead. That being said, before some of you stop reading, these are just my beliefs. I believe in Jesus Christ, but that doesn’t mean I’m going to push my beliefs on anyone else. Everyone has the freedom to make their own choices, and I love you (and so does Jesus) regardless of what those choices are.
I’m a book-a-holic and I have been since my parents first started reading to me when I was itty bitty.
I was reading Nancy Drew books by the time I was seven. In middle school, I used to read around 30 books a summer. Now I’m back into reading again after a long hiatus (aka six years of college and then my career) and I’m loving it.
I have lots of chronic illnesses (see my About page), but my most recent diagnosis is dysautonomia/POTS. It sucks. I hate it. It’s mean and spiteful.
I had a brain tumor last year that was removed through my nose. Although I would have picked that over any other method, it was just as unpleasant as it sounds.
Due to my dysautonomia and associated brain fog, (seriously, it’s debilitating), I have to write down everything in a planner, otherwise I forget to do it.
I marched on Washington to raise awareness for endometriosis before it was cool to march on Washington, haha.
I have seven cats. They all love snuggling on the bed with me and the electric blankie. Can you find all of them in the picture?
Unlike most people who will write about politics for today’s prompt, I hate politics, so I will avoid talking about it on my blog. No, instead, I’m going to write about something I bring up occasionally and is so important for those who are chronically ill: patient advocacy.
Much of my experience with advocating for my own healthcare is told in this blog post, when I sought out a second opinion for my endometriosis to be treated by literally one of the best surgeons in the world. But I have had to pull myself up by my own bootstraps again lately when it comes to getting the care I deserve. (Because healthcare is a right, not a privilege. Ok, some politics, I guess.) Continue reading “Resist: Don’t Let Them Tell You No”
Sometimes the only way to get the best care is to take things into your own hands. I’ve done it before, and now I’ve had to do it again. But I’m glad I did.
Dr. J had told me to call his office about a week after my testing that occurred on January 11th and January 13th to talk to a nurse about my results. So I called on Thursday the 19th. They said they’d call me back in a few days. Nothing. So I called again Monday the 23rd. The said to give it “one more day.” Nothing. I sent a MyChart message Wednesday politely demanding the results be released and for someone to call me to discuss them. Last Thursday night most of my test results were released to MyChart, but with no explanation, so I had no idea what they meant. So I called the office Friday morning to see what the heck was going on. Continue reading “I’m a Little POTSie…”
Start humming “Auld Lang Syne.” (Seriously, just work with me here.)
“Your grace will never be forgot
Your mercy all my life
Will be my soul’s forever song
My story and my light…”
It’s easy for me to sit here and bash 2016 for what a horrendous year it was. I’ve already done a pretty good job of that in my personal journal.
I am not yet done grieving the past year and what it did to me. But I would be remiss if I said that nothing good came out of this year. I almost have to grit my teeth saying that, because I want nothing more than to scream and cry and release some serious emotions about this trash heap of a year. But not knowing what is to come in 2017, maybe 2016 can at least go out on a high note.