An Update During Awareness Week: How Is My Mental Health?
Trigger warning: this post contains discussions of depression, self harm, and suicidal ideation. Please steer clear if these subjects may act as a trigger for you.
Since I rarely pay attention to much of anything anymore, it’s taken me until the middle of this week to realize that it’s Mental Health Awareness Week…in the United Kingdom. (A large portion of blogs I follow and bloggers who follow me hail from the U.K.) Awareness Week here in the States isn’t until October 7th-13th this year. But since I haven’t written of my mental health in some time, I figured it might be time to offer an update. Why not? 62% of my DNA is British.
Warning now, my responses are blunt.
Am I Still Depressed?
Yes. Some days are better than others. I don’t even want to write this. That’s one way I know I’m still in the grips of depression.
But Why?
Unfortunately, there is bountiful depression fodder to be had in my life. Granted, it’s been that way for over two years now. When one problem goes away, another takes its place; it’s merely a question of what the current problems are and how they cause my depression to wax and wane.
I’ve completely lost all faith in myself when it comes to blogging, which is why I’ve more or less stopped. When I put my all into writing this post for Endometriosis Awareness Month in March, it got such a pathetically lukewarm response for the subject matter that I basically threw my hands up and said, “Screw it.” I’m not even sure I’ll write the sequel since no one cared about the first part. Writing was my outlet. Not being able to do it anymore because my brain doesn’t work properly is akin to taking away my voice.
My employment officially ended as of May 7th. Once my FMLA ran out, I went on short-term disability in May 2016. After six months, this became long-term disability. At that point, it was simply a countdown to the end. I had 24 months to get better and I couldn’t do it. The first six months involved waiting for and then enduring pelvic surgery in Atlanta, then brain surgery, then the stenting of my aneurysm. The remaining 18 months was taken up with trying to manage my POTS, which is now the bane of my existence. My condition has reached a sort of plateau with little improvement to speak of in recent months. So since I still can’t work, my employment was terminated. Again, I knew it was coming. But that doesn’t make it any easier to deal with. A post for another time.
I suppose I’m a bit lonely. The problem is, I don’t want to see anybody. Not because I don’t appreciate my few remaining friends and miss seeing them. It’s because it is so difficult and literally physically exhausting for me to speak. Carrying on a prolonged verbal conversation (meaning, more than about five minutes) is next to impossible. Not to mention the fact that with my brain fog, conversations are an embarrassment to me because I can’t speak fluently; there are words I can’t remember and the words I can remember get jumbled.
How Is Depression Affecting Me Physically?
My sleep is completely unmanageable. A hallmark of depression, unfortunately. Most of this is due to my pain being equally unmanageable at times. I’ll be awake for 24-30 hours because I just can’t sleep. Following this, I’ll sleep fitfully for 2-3 hours at a time following by prolonged awakening. Then I’ll sleep for 12 hours the next night. Then I won’t be able to sleep for another 24 hours. I’ll soon be completely nocturnal (which I prefer anyway.) Sleep medications don’t make me tired anymore.
Another reason my sleep is so out of whack is because of the way my brain works now. Most of the time, I can’t remember anything anymore. That thing about forgetting what you’re doing while you’re doing it? Actually true for me. I will get up to get something and by the time I’ve taken four steps, I can no longer remember why I got up. It’s not funny, it’s frightening. And frustrating.
Now, my practice is that whenever I think of something, I do it, even if it means getting up in the middle of the night. Which is why as I’m writing this paragraph, it’s 5:40 am. I just dozed for an hour and a half, woke up at 4 am, and have been laying awake ever since. Pain is keeping me awake and despite the good intentions of the three cats literally laying on top of me, I’m unable to get comfortable. Then writing about this crossed my mind and so here I sit in bed, in the dark, with David snoring next to me, because if I don’t write it down now, I won’t remember that I wanted to.
Am I Still Self Harming?
No. I am happy to report that I have not self harmed in 14 months.
Am I Still Suicidal?
No. I mean, I never really was. At least, I was never actively suicidal, I was passively suicidal. I didn’t want to actually end my life, yet I didn’t want to be alive. But I’m going to be honest: I’m not at all afraid of dying. Why? Because of my faith, I believe that once I die, I will be in Heaven. I will have a glorified body that will work as it was designed to do before sin entered the world and caused this whole mess of sickness. In Heaven, I will never feel pain again, which will be such a beautiful feeling since being pain-free isn’t a sensation I can recall anymore. I will get to spend eternity with a perfect body in the presence of the Lord. So yeah, getting to Heaven is going to be awesome. But that’s on His time, not mine.
So there you have it. Life could certainly be better. But it’s been worse. And I really don’t want to go back there again.
💛ribbonrx
7 thoughts on “An Update During Awareness Week: How Is My Mental Health?”
I’m not a great writer, and always feel as though you could be writing what’s in my mind when I read your blog. I’m seeing a psychiatrist for the first time tomorrow and I’m riddled with anxiety. Photography is my outlet like writing is yours. I haven’t been able to go shoot for months now. My endo pain has pretty much been daily for almost 4yrs now and lately my lack of sleep is just adding to everything. Cant sleep for unknown reasons when it’s not do to pain. My sleep pattern is so similar to what you described. So in addition to the awful endo pain and sleep deprivation I have anxiety in abundance with so much stress. The hospital I’ve worked at for 14 1/2 yrs plus 2yrs of clinical is closing soon, our insurance doesn’t pay for Dr Mini, and recently had to wean off my anxiety medication since my pcp just doesn’t want to prescribe it. My depression has come back with a vengeance this year. I get so down when I have flares and when it gets “better” I’m so exhausted trying to recover that I just cant bring myself to carpe diem. Thinking of you and very thankful to read your blog🖤
Hi there, Katy! 👋🏻 Good to hear from you!
I hope you have a good match with your new psychiatrist. She should certainly be able to prescribe anxiety meds for you if your PCP won’t. I saw one a few years ago and she really wasn’t very helpful to me. But I know some people for whom therapy is extremely helpful!
We really are a lot alike, aren’t we? My depression has also flared this year, starting in February. Endo pain seems to be very good at causing sleep deprivation, that’s for sure!
I’m glad my blog is helpful to you. Knowing that makes me smile. 😊💛🎗
If it helps at all, I always enjoy reading your posts. Your description of how brain fog has impacted your life and relationships, as well as how you’ve had to learn ways to work around it (for example: doing things as soon as you think about them) are exactly my experiences, too. My mom and I often tell each other “remind me to remind you to remind me” because our combined foggy brains only make up half of one healthy and clear brain. You’re not alone. ❤️
I am so sorry you’ve having issues with sleep, pain and memory too. Although I’m not going through what you are, and can’t pretend to ‘know’ how you feel exactly, I can empathise with those things to certain degrees. My sleep is awful, and insomnia gets painful. I don’t sleep 12 hours like you may do after not sleeping for several days, but I would imagine that can through you through a loop. I wonder if that’s one issue (lack of sleep) along perhaps with overstressing, that’s having a detrimental impact on my memory and wouldn’t be helping yours either. I write a lot of lists, make notes of things when I think of them. You’ve had a lot going on and the work and finance side of things just adds another layer of awful to deal with. You’re doing the best you can and with depression, then feeling lonely but wanting/not wanting to see others, and physical health issues…well… it’s a lot for anyone. There can and will be brighter days, just as things are better today than they perhaps have been in the past. Hold in there. Sending love and hugs your way ♥
Caz xx
I was wondering when you might write the sequel to your experience after the surgery, as you said you would in that post… I can relate to a lot of what you have shared here. One thing I’d like to say is, I have been waiting for and will read the sequel if you ever decide to write it. However, it is completely your choice.
I could certainly do that! I’m so excited that you’re looking forward to it! That makes my heart happy. 😊 This may sound weird, but now that it’s summer, it’s easier for me to write about endometriosis because so many of my early blog posts about endo were written during the summer of 2016! I’m working on a post now about how medical errors can be caused by poor medical documentation, based on Tuesday’s HuffPost article by Abby Norman. But I will hopefully be able to get to the sequel next! 🙂
Ok, great! And, I would also like to add (though, this may be unwanted advice), that you don’t need to base what you post or share on other people. I sometimes get discouraged because I might not have useful things to post, hence, few people read my posts, etc. I asked one of my friends if I should quit my blog and everything. She reminded me that I’m just doing this for fun, as a way to have an outlet. And it doesn’t matter if even no one reads my blog or posts. And I think she is right 😉 I have learned to make some improvements, which I’ll try in the future. But even so, I’m not blogging for other people. I’m doing it for myself 😉