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50 Questions You’ve Never Been Asked

50 Questions You’ve Never Been Asked

I love fun stuff like this. It’s distracting me from the hell hole that is my life lately. Thanks Dangerously Normal Spoonie for the idea! 1. What’s your favorite candle scent? North Pole from Yankee Candle. 2. What female celebrity do you wish was your sister? Emma Watson 3. What male celebrity do you wish was your brother? Tom Hiddleston (seriously, he’s only four years older than me.) 4. How old do you think you’ll be when you get married? I was 24 when…

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A Day With Dysautonomia

A Day With Dysautonomia

What’s it like to have dysautonomia? Let me take you through a day in my compression socks so you have some idea of what I fight through on a daily basis. Imagine it’s a new day. You wake up and get out of bed. You do your business and then brush your teeth (with an electric toothbrush, by the way.) As you’re doing this, you place two of your fingers over your carotid artery. Your heart rate is rapid, probably in…

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For All That You Have Done

For All That You Have Done

Start humming “Auld Lang Syne.” (Seriously, just work with me here.) “Your grace will never be forgot Your mercy all my life Will be my soul’s forever song My story and my light…” It’s easy for me to sit here and bash 2016 for what a horrendous year it was. I’ve already done a pretty good job of that in my personal journal. I am not yet done grieving the past year and what it did to me. But I…

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Is It Everything You Dreamed It Would Be?

Is It Everything You Dreamed It Would Be?

This is, verbatim, a journal entry of mine from January 17th and 18th, 2016, back when I did a lot of writing prompts. It’s interesting to look back on now. Another writing prompt I saw online was to list out 100 things that you want. At first I thought that sounded kind of selfish, but then I thought about it and realized that things you want don’t have to be material, and wanting things doesn’t indicate a lack of God’s…

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How Chronic Illness Showed Me What Love Is

How Chronic Illness Showed Me What Love Is

I’ve heard the stories, and I’m sure some of you have as well. Every now and then, someone in one of my Facebook support groups will post the news that her significant other is leaving because he or she can’t deal with her chronic illness. Sometimes this is a breakup; other times it means divorce. No matter how big or small the breakup, this is a tragedy that plays out too often in the world today. It makes me sad….

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Onward and Upward

Onward and Upward

Friday I had my first post-op follow-up visit after my brain surgery two weeks ago, this one with the ENT surgeon Dr. Sindwani. He scoped my nose and removed what he called “scar bands” that had formed, which he said is fairly common. This caused a bit of a bloody nose, but that’s pretty typical for me anyway. But he said everything looks great and he’ll see me back in four months! He cleared me of all restrictions, but I’m…

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Nocturnal Musings #14: Up All Night

Nocturnal Musings #14: Up All Night

Although the current time is no longer nocturnal, I was literally up all night and started thinking about maybe writing a blog post in the predawn hours, so I’m going to count it anyway. Yes, I was up all night. And I’m obviously still awake, even though it’s after 10 am. Maybe thinking through and writing down what is on my mind will help me pinpoint why I’ve been awake and will help me get to sleep. This will be…

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Back in the Hole

Back in the Hole

Today (or rather, yesterday at this point), was going to be such a good day. I slept well, despite my usual late 4:30 pm wake-up, but I felt good when I woke up and was looking forward to having a good day. Until I read my email. I received an email from my manager that for whatever reason, absence management is claiming they don’t have any of the paperwork for my current leave or upcoming leave. This just adds more fire…

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