Share Your World- January 16, 2017

This will be a weekly post of the most random of random questions to answer- to share my world! Thanks to Cee’s blog for being the brainchild behind this!

(The above picture was taken by myself at 3:15 am a few weeks ago during a heavy snowfall.)

1. Do you sleep with your closet doors open or closed? We have a small walk-in closet, so we keep the door open (aka there’s too much stuff in front of the door to close it.) Plus, there’s actually a heat vent on the closet floor that the cats will sleep on during the winter.

2. Do you take the shampoos and conditioner bottles from hotel? If they’re good. We then use them if we travel to places where we won’t be staying in a hotel and don’t want to haul around normal-sized bottles.

3. What is your usual bedtime? I’ve been on medical leave for the past seven months and I’m a huge night owl. Typically I try to be in bed around 2-2:30 am, but that often winds up being 3 or 4 am…

4. Do you like to use post-it notes? As bookmarks.

5. When was the last time you wrote a letter to someone on paper? Ahh…a few months ago when I last wrote to my sponsor children in Peru 🇵🇪 and Rwanda 🇷🇼.

6. Any phobias?  Electrical fires, spiders, and the hospital I work at.

7. How tall are you? 5’3″

Optional Bonus question: What are you grateful for from last week, and what are you looking forward to in the week coming up? I’m grateful for the extensive level of testing I was able to have done last week in an attempt to tease out what form of dysautonomia I have. I am grateful that one of the country’s few autonomic centers is in my backyard. This week, I am hopeful I will get the results and begin to develop a game plan moving forward as how to manage whichever form of dysautonomia I have.

💛ribbonrx

5 thoughts on “Share Your World- January 16, 2017”

  1. I’m curious how having a phobia of your work came about. Do you have any thoughts?

    I agree that being able to have thorough dysautonomia testing is such a gift.

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    1. Well, it’s kind of interesting how that phobia arose. I’ll explain a bit since you’re new to my blog, haha. My health problems really took a nosedive in 2014 when I was diagnosed with endometriosis. But then 2016 came along, and with it: infertility, depression, self harm, intractable migraines, a pituitary tumor, another surgery for my endometriosis, brain surgery for the tumor, discovery of an aneurysm, and a stent placed to block off the aneurysm. I spent several painful days in the hospital and several trips to the emergency room. Three surgeries in four months. After being poked and prodded and getting no sleep throughout any of my hospitalizations and the pain from surgeries and the tough recoveries…every time I go near that place, I want to run away. I’ve been on medical leave for seven months now.
      And I’m still dealing with it as this dysautonomia stuff suddenly appeared out of nowhere a few days before Christmas. The hospital I work at happens to be an autonomic center, so I’ve been there three times already this year, another appointment today, and two next week.
      It’s something I’m trying to get over, but it’s not as easy as it sounds. 😕

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      1. Wow you’ve been through so much! Thanks for catching me up. I completely understand not wanting to be in the hospital after all that! It doesn’t sound like an easy thing to overcome at all. What was your job there?

        I’m happy dysautonomia was correctly identified so quickly for you. It would be luckier if you didn’t have it, but if you do, it’s lucky to be near one of the few autonomic centers and to get in so quickly!

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  2. I’m a pediatric pharmacist actually, so I’m on the nursing floors surrounded by patient care a lot, which doesn’t help with the phobia.
    I think I got in so quickly because I have connections. I went to the emergency room for my symptoms and when all my labs came back normal, my husband (an emergency room pharmacist) suggested a Holter monitor. The doc, who has taken care of me before and knows my history, agreed. Then I got into the clinic early because they have appointments within a week for people who have Holters. Then all the testing was scheduled from there!

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