It makes me so sad to see my endo sisters struggling. Suffering. In pain. Whether it be on other blogs, Facebook, or Twitter. I see it day in and day out.
One recovering from surgery at about the same pace I am, but is now dealing emotionally as well as physically with the loss of her fertility.
Another whose surgeon opened her up, said, “Yup, there’s endo” and closed her without touching any of the endo. That is cruel to put someone through something as painful and dangerous as a surgery for that.
Another being told it’s “time for another surgery” when if this doctor of hers would just refer her to an excisionist in the first place, she would be more likely to have relief of symptoms, possibly without expecting to need a surgery every couple years.
I myself, who wasn’t given any pain medication in the OR during my first endo surgery and woke up screaming in PACU because I’d been cut open and operated on without pain relief. Yes, it happened.
But this is what it’s like to have endo. This kind of thing is commonplace. Poor treatment. Bad treatment. Inhumane treatment.
Because we can’t possibly be in that much pain.
Because our symptoms couldn’t possibly have started 14 years ago.
Because it’s all in our heads.
Because there’s no cure.
Because it won’t kill us.
Because even doctors aren’t properly educated on how to treat endo.
Because we’re misinformed as patients.
Because we’re women.
Because women are meant to suffer.
Because we aren’t saying anything.
Because it’s just endo.