I’m a Little POTSie…

Sometimes the only way to get the best care is to take things into your own hands. I’ve done it before, and now I’ve had to do it again. But I’m glad I did.

Dr. J had told me to call his office about a week after my testing that occurred on January 11th and January 13th to talk to a nurse about my results. So I called on Thursday the 19th. They said they’d call me back in a few days. Nothing. So I called again Monday the 23rd. The said to give it “one more day.” Nothing. I sent a MyChart message Wednesday politely demanding the results be released and for someone to call me to discuss them. Last Thursday night most of my test results were released to MyChart, but with no explanation, so I had no idea what they meant. So I called the office Friday morning to see what the heck was going on. Continue reading “I’m a Little POTSie…”

For All That You Have Done

Start humming “Auld Lang Syne.” (Seriously, just work with me here.)

“Your grace will never be forgot
Your mercy all my life
Will be my soul’s forever song
My story and my light…”

It’s easy for me to sit here and bash 2016 for what a horrendous year it was. I’ve already done a pretty good job of that in my personal journal.

I am not yet done grieving the past year and what it did to me. But I would be remiss if I said that nothing good came out of this year. I almost have to grit my teeth saying that, because I want nothing more than to scream and cry and release some serious emotions about this trash heap of a year. But not knowing what is to come in 2017, maybe 2016 can at least go out on a high note.

So what have I gained from all of the nonsense of 2016? What good did I get out of everything I went through? Continue reading “For All That You Have Done”

Top Posts of 2016: Endo and Tumors and Aneurysms, oh my!

As the year is (finally!) drawing to a close, I decided to go back and look at some of my old posts to see how life has changed in the past six months since I started this blog. My goal was, and still is, to raise awareness about certain chronic health issues that affect me, including endometriosis, adenomyosis, infertility, depression, self harm, social anxiety, celiac disease, pituitary tumor, and I guess that pesky little aneurysm.

Here are my top ten posts from 2016, starting with the most hits and working downward. Feel free to re-visit them if you’ve read them before or check them out if you’re new to πŸ’›ribbonrx! Continue reading “Top Posts of 2016: Endo and Tumors and Aneurysms, oh my!”

Let It All Come Out

“It’s hard to find motivation to do anything at times like this. It’s hard to cope or to even see through the fog at all when your mind is so focused on something that it wants so much. Recover. Not just physically, but emotionally. Let things settle, and yes, that means let it all out. Grieve. This is a grieving process.” Β  Β  Β  Β  Β  Β  ~London Blogger Friend

London Blogger Friend and I don’t actually know each other. We just follow each other’s blogs. But we’ve developed an interesting relationship in that we somehow understand each other, even though we’re going through vastly different, yet somewhat similar, life battles at present. The comments we leave each other on blog posts are often long enough to be blog posts themselves. We’re somehow invested in each other and each other’s well being, despite the fact that I don’t even know her name, and I’m not sure if she knows mine.

She gave me the above advice recently regarding my ongoing struggle with infertility, which always becomes an open wound at the holidays, especially this year. Because this was supposed to be the year. Guaranteed. But because nothing good can happen to me in regards to health for the last four years…and I’m not sure how optimistic I am about next year either.

So this is me, letting it all out.


Continue reading “Let It All Come Out”

Achievement Unlocked!

(Ok, I just want to say that I titled this post andΒ wrote the whole thingΒ before I found that picture! Has anything so perfect ever occurred in this world? I can’t stop laughing!)πŸ˜‚

But!

Today a monumental thing occurred.

I left the house!πŸ˜‚

I know, I know, don’t be jealous.

But I only left the house because I had a doctor’s appointment with my amazing PCP. Seriously, love her. Continue reading “Achievement Unlocked!”

Fear of the Familiar

I have a confession to make.

I am afraid of the hospital. Not “hospitals” in general, but one specific hospital.

This is even more of a conundrum because it’s the same hospital where I work. Fabulous.

This is something I’ve been keeping secret for awhile, because I’m honestly ashamed of it, although it hasn’t reared its ugly head and become a problem until recently. Continue reading “Fear of the Familiar”

Have Yourself a Spoonie Little Christmas

Even though I was diagnosed with endometriosis in 2014, I have to say this Christmas will really be my first as a true spoonie. (Not sure what I mean when I say spoonie? Check it out hereΒ to learn about the Spoon Theory.)Β 2016 added a whole mountain range of problems to my health history, all of which I’ve had to climb to overcome. (And considering the Grand Canyon fiasco from 2013, I don’t have the greatest climbing skills…but that’s another blog post someday.)

Even just preparing for Christmas as a spoonie is a huge challenge. Continue reading “Have Yourself a Spoonie Little Christmas”