I feel down. I can’t stand this brain fog. It’s probably the most frustrating thing I’ve ever had to deal with, and one of the worst parts of dysautonomia/POTS. I’m used to having a sharp, functioning mind that could multi-task. Now I’ll think of something, get out of bed, and then not be able…
What a treat to be nominated for the One Lovely Blog Award on Valentine’s Day! Thank you spooniemom (aka Tracy) at Me, My Spoons, and I for the nomination! I am honored! Tracy has been fighting an as yet undiagnosed chronic illness for a long time. She is a true spoonie warrior! (You all…
This will be a weekly post of the most random of random questions to answer- to share my world! Thanks to Cee’s blog for being the brainchild behind this! Do you sleep with your sheets tucked in or out? They’re tucked in at the end of the bed, but untucked everywhere else. Otherwise I feel like…
via Daily Prompt: Heard What do you do when you feel you’re not being heard? By family? By friends? By God? I don’t think it’s their fault. It’s not their fault. It’s my fault. My mind is such a foggy mess right now. It’s like there’s a short somewhere, or a connection that’s gone…
via Daily Prompt: Overwhelming It doesn’t take a psychiatrist to figure out that right now my life is exceptionally overwhelming. I thought I’d gone through a lot last year, which I did. Unfortunately, it appears, at least so far, that 2017 is turning out to be a real stinker as well. And we’re only…
Sometimes the only way to get the best care is to take things into your own hands. I’ve done it before, and now I’ve had to do it again. But I’m glad I did. Dr. J had told me to call his office about a week after my testing that occurred on January 11th…
What’s it like to have dysautonomia? Let me take you through a day in my compression socks so you have some idea of what I fight through on a daily basis. Imagine it’s a new day. You wake up and get out of bed. You do your business and then brush your teeth (with…
There are a lot of things I hate about having dysautonomia. The dizziness, the lightheadedness, the tachycardia, the salt, the fluids, the compression socks (even though mine are cute), the occasional need for a wheelchair in public that makes people think I’m a crazy faker because sometimes I can walk and sometimes I can’t…
Finally, a post that’s not about dry medical procedures and appointments! I’m not expecting this post to be much of anything, though. I just need an outlet to get my thoughts together. Since my appointment with Dr. J the first week of January, I’ve made the specified modifications he asked me to do to…
Today I had what is hopefully the last of my testing to determine which form of dysautonomia I have and what caused it. Combined with my testing from the other day, I’m hoping the diagnosis and cause should be fairly evident by the time all is said and done. I could hardly sleep last…
