What’s it like to have dysautonomia? Let me take you through a day in my compression socks so you have some idea of what I fight through on a daily basis. Imagine it’s a new day. You wake up and get out of bed. You do your business and then brush your teeth (with…
There are a lot of things I hate about having dysautonomia. The dizziness, the lightheadedness, the tachycardia, the salt, the fluids, the compression socks (even though mine are cute), the occasional need for a wheelchair in public that makes people think I’m a crazy faker because sometimes I can walk and sometimes I can’t…
I’m going to try something a little different here. Last year was a rough year for me due to medical problems I had. I poured out my heart and soul into my personal journals, which were my lifeline keeping me somewhat grounded. To give you an idea of what it was really like to go…
Finally, a post that’s not about dry medical procedures and appointments! I’m not expecting this post to be much of anything, though. I just need an outlet to get my thoughts together. Since my appointment with Dr. J the first week of January, I’ve made the specified modifications he asked me to do to…
Start humming “Auld Lang Syne.” (Seriously, just work with me here.) “Your grace will never be forgot Your mercy all my life Will be my soul’s forever song My story and my light…” It’s easy for me to sit here and bash 2016 for what a horrendous year it was. I’ve already done a…
As the year is (finally!) drawing to a close, I decided to go back and look at some of my old posts to see how life has changed in the past six months since I started this blog. My goal was, and still is, to raise awareness about certain chronic health issues that affect…
Now that Christmas has come and gone, I suppose it’s time to be like everyone else and write about it! I’ll start with Christmas Eve, since that’s when all the action started. The day began quite horribly. I was still wearing the Holter monitor, and it’s a good thing too, because I was extremely…
Yes, the above photo is real. I took it about two years ago while filling out the questionnaire for our respirator fit tests at work. I thought of it again today when I came across some questions that, while not necessarily odd, certainly made me pause and either shake my head or laugh. And…
“It’s hard to find motivation to do anything at times like this. It’s hard to cope or to even see through the fog at all when your mind is so focused on something that it wants so much. Recover. Not just physically, but emotionally. Let things settle, and yes, that means let it all…
(Ok, I just want to say that I titled this post and wrote the whole thing before I found that picture! Has anything so perfect ever occurred in this world? I can’t stop laughing!)? But! Today a monumental thing occurred. I left the house!? I know, I know, don’t be jealous. But I only left the…