I’ve heard the stories, and I’m sure some of you have as well. Every now and then, someone in one of my Facebook support groups will post the news that her significant other is leaving because he or she can’t deal with her chronic illness. Sometimes this is a breakup; other times it means…
Friday I had my first post-op follow-up visit after my brain surgery two weeks ago, this one with the ENT surgeon Dr. Sindwani. He scoped my nose and removed what he called “scar bands” that had formed, which he said is fairly common. This caused a bit of a bloody nose, but that’s pretty…
*May contain triggers for domestic violence* I can’t seem to focus on anything today. Granted, I slept until 4:30 pm because I didn’t go to bed until 5:30 am, so it’s not like I’ve been awake all that long. But there are so many things going through my mind, it’s like a tornado in…
*May contain triggers for domestic violence * I could have gone to bed a few hours ago. I was planning to around 4 am. But then as I was perusing Facebook one last time, I came across a disturbing status in one of the many endo groups I’m a part of. A sister posted…
Numb. Nervous. Yet ecstatic. That’s really what I’m feeling right now. A big wibbly wobbly ball of emotions that I can’t seem to get sorted out.
If I thought last Friday was a big day, spending all day at the hospital for my various physical exams, blood work, and scans, I would say today actually outweighs it by several metric tons. I mean, I already knew I had a pituitary tumor. The question of course was had it changed in…
I’m not sure what to say right now. Today was a day that pushed me to my limits in ways I never thought I could be. Emotionally, I’m a mess. Mentally, I’m overwhelmed. Physically, I don’t know if I’ll ever sleep again until all this gets figured out.
Today (or rather, yesterday at this point), was going to be such a good day. I slept well, despite my usual late 4:30 pm wake-up, but I felt good when I woke up and was looking forward to having a good day. Until I read my email. I received an email from my manager…
Day 29: What has helped you cope with the stress of this lifestyle? I don’t think anyone would deny that dealing with a bevy of chronic illnesses is stressful. Sometimes it’s difficult to cope, especially on days when you aren’t feeling your best. And there are some days when honestly, coping is just impossible….
Coping with multiple chronic illnesses is challenging. Very challenging. It’s hard to know how you will feel one day to the next. When my husband asked me if I was going to feel well enough to get to my doctor’s appointments in a few days, I had to remind him I don’t know how…
