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Raising Awareness About Life

Nocturnal Musings #10: I Fear the Dark

Nocturnal Musings #10: I Fear the Dark

September 2, 2016 ribbonrx Comments 0 Comment

Not literally. Darkness doesn’t bother me at all. I prefer night time over day time. But of course, it’s almost 4 am and I can’t sleep waiting for this diagnosis. I know what I think, and it’s not good.

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The Big Day?

The Big Day?

September 1, 2016 ribbonrx Comments 0 Comment

If I thought last Friday was a big day, spending all day at the hospital for my various physical exams, blood work, and scans, I would say today actually outweighs it by several metric tons. I mean, I already knew I had a pituitary tumor. The question of course was had it changed in…

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Didn’t See This Coming

Didn’t See This Coming

August 31, 2016 ribbonrx Comments 0 Comment

I’m not sure what to say right now. Today was a day that pushed me to my limits in ways I never thought I could be. Emotionally, I’m a mess. Mentally, I’m overwhelmed. Physically, I don’t know if I’ll ever sleep again until all this gets figured out.

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Back in the Hole

Back in the Hole

August 30, 2016 ribbonrx Comments 0 Comment

Today (or rather, yesterday at this point), was going to be such a good day. I slept well, despite my usual late 4:30 pm wake-up, but I felt good when I woke up and was looking forward to having a good day. Until I read my email. I received an email from my manager…

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Nocturnal Musings #9: Back to Before?

Nocturnal Musings #9: Back to Before?

August 29, 2016 ribbonrx Comments 0 Comment

Here it is, 4:30 am on the last Monday of August. And I cannot sleep for anything. I’ve pretty much been on a night shift sleep schedule for the past month, where I go to bed between 3-5 am and get up anywhere between 2-6 pm. I’m a natural night owl; I take after…

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Chronic Illness Challenge: Day 29

Chronic Illness Challenge: Day 29

August 29, 2016 ribbonrx Comments 0 Comment

Day 29: What has helped you cope with the stress of this lifestyle? I don’t think anyone would deny that dealing with a bevy of chronic illnesses is stressful. Sometimes it’s difficult to cope, especially on days when you aren’t feeling your best. And there are some days when honestly, coping is just impossible….

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One Hundred

One Hundred

August 28, 2016 ribbonrx Comments 0 Comment

This is my 100th post. It’s hard to believe I’ve come that far already. My intention in starting this blog was to raise awareness of various chronic illnesses, particularly the ones I suffer from. Endometriosis. Adenomyosis. Celiac disease. Infertility. Depression. Social anxiety disorder. That stupid brain tumor. Yet I’ve also found that I find…

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Chronic Illness Challenge: Day 28

Chronic Illness Challenge: Day 28

August 28, 2016 ribbonrx Comments 0 Comment

Day 28: Name five things you have achieved despite your illness. Isn’t this basically the same thing as that question from a few days ago? I need some variety, here. But I’ll give it a whirl anyway.

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MRIs, CT scans, and Blood Tests, Oh My!

MRIs, CT scans, and Blood Tests, Oh My!

August 27, 2016 ribbonrx Comments 0 Comment

I don’t remember the last time I was exhausted as I was when I got home from the hospital yesterday after a day full of pre-op testing for my brain surgery, which is in 12 days and counting. I’ve had numerous surgeries (this will be number five), but none of them required the extreme…

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Chronic Illness Challenge: Day 27

Chronic Illness Challenge: Day 27

August 27, 2016 ribbonrx Comments 0 Comment

Day 27: What’s the most helpful advice you have had? Good advice is hard to come by when you have chronic illnesses. People mean well, but often have no idea what they’re talking about. Sometimes the best advice a person with chronic illnesses can receive is advice from another person with chronic illness, at…

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