Nocturnal Musings #20: Junk

No sleep for me. I’ve turned nocturnal again recently. But that’s not the main reason I’m awake right now.

I was awake for 30 hours straight the other day. No idea why, I just didn’t want to sleep. So yesterday I then slept for 20 hours. This got me doubly dehydrated, despite drinking a total of a liter of water throughout the day during my brief awakenings. (Although now my body laughs at such a puny amount of water!) I’ve now been awake for eight hours, but still feel awful. It would probably be dangerous for me to go to sleep now without being fully hydrated. So I’m awake still, trying to catch up.

Staring at the wall. Continue reading “Nocturnal Musings #20: Junk”

Happy Endo-Versary!

My two-year endo-versary was on October 29th, which means it’s now been almost 2 1/2 years since I had skilled excision surgery! And I am still doing well today!💛🎗😊🙏🏻🙌

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Today is my two-year endo-versary! What the heck is that? It’s been two years to the day since I underwent excision surgery at the Center for Endometriosis Care (CEC) in Atlanta, by the awesome Dr. Sinervo!

You may be thinking, isn’t it kind of silly to celebrate the anniversary of a surgical procedure? In a word…no. Wouldn’t a patient in heart failure celebrate the anniversary of the day they received a heart transplant? That’s what it’s like for those of us with endometriosis. The day you have skilled excision (because not all excision is created equal) is like getting a new heart. It puts you back on track to living a normal life again. Perhaps that sounds overdramatic to many of you. But until you have experienced the level of disability and pain that endometriosis can cause, you won’t truly understand what it’s like to be freed from the chains…

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Top Ten Tuesday: Books Read in One Day

Top Ten Tuesday is a weekly meme hosted by The Broke and the Bookish. I’ve never participated in this meme before, so I’ll start with last week’s because I know it’s one I can do pretty easily.

Top Ten Books Read in One Day (alphabetical by author, cuz that’s how I roll):

  1. Hyperbole and a Half by Allie Brosh
  2. Everyone Brave is Forgiven by Chris Cleave
  3. The Alchemist by Paulo Coelho
  4. The Fifth Mountain by Paulo Coelho
  5. Today Means Amen by Sierra DeMulder
  6. Humans: An A to Z by Matt Haig
  7. When Breath Becomes Air by Paul Kalanithi
  8. Is It All In Your Head?: True Stories of Imaginary Illness by Suzanne O’Sullivan
  9. But God, Wouldn’t I Be More Useful to You If I Were Healthy? by Esther Smith
  10. When Chronic Pain and Illness Take Everything Away by Esther Smith

Some of these I can’t believe I read in a single day. Everyone Brave is Forgiven is 424 pages, but a quick read, while Is It All In Your Head? is only 291 pages, but I read more slowly because I was enthralled by the medical stuff. But no matter the length, once I hit that spot, that always-present point-of-no-return, my fate was sealed!

Has anyone else ever read any of these books? I can’t seem to find anyone else on the planet with my taste in literature…🙄

💛ribbonrx

Share Your World- March 27, 2017

This will be a weekly post of the most random of random questions to answer- to share my world! Thanks to Cee’s blog for being the brainchild behind this!

Does your first or middle name have any significance (or were you named after another family member)? My first name, no. My middle name is my mother’s first name (same with my brother; his middle name is my father’s first name.)

Music or silence while working? It really depends on what I’m doing and what kind of mood I’m in. I have music on right now and I generally do while I’m blogging. But while I’m writing in my journal, I’m a bit more introspective, so I prefer silence. If I happen to be doing anything else, like folding laundry, I like music to be on. Continue reading “Share Your World- March 27, 2017”

How to Support a Loved One Who Has Endometriosis

Hopefully, by this point in Endometriosis Awareness Month, some of these posts will have been shared with the families of individuals affected. Well, this post is meant for them: the family members, the friends, the significant others who have someone they love in their lives that has endometriosis. Read on for practical ideas on what you can do to help your suffering daughter/sister/mother/aunt/cousin/wife/partner/friend! 💛🎗

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Endometriosis is a challenging disease. Not only is it poorly understood in the medical arena, but most people in general have never even heard of it. Yet it affects 1 in 10 women worldwide and can take up to ten years, or longer, to be properly diagnosed. Symptoms can be debilitating, and women may have to endure multiple surgeries to find relief. The gold standard and best treatment available, surgical excision, is challenging for many women to have access to, due to insurance issues, geography, and the sheer lack of skilled and experienced surgeons who are able to perform this meticulous surgery.

So what can you do if you have a loved one who is diagnosed with this life-altering disease?

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A Quality-of-Life Update

I guess it’s been awhile since I’ve written a real post. Since it’s Endometriosis Awareness Month, I’ve been trying to reblog my better endo-related posts to raise awareness at a time when it’s most important. You can check out my new endo-specific page here, with information, expanding resources, and links to my blog posts. It’s pretty and has that new-page smell! 😊🎗

I guess, when it comes down to it, I’ve been using this month to hide. From myself, from the world. Some good things and some not-so-good things have happened, which you would know if you read any of my weekly Monday “Share Your World” posts. (But the vast majority of people who read those are people who don’t actually know me, so what do the finer details of my life matter to them?)

I’m on this merry-go-round that happens to be a roller coaster at the same time. And I really want to get off it so I can puke (no, really, I am actually uncomfortably nauseous right now, but it’s become a constant part of my life, too, so whatever.) Or at least purge…something. Continue reading “A Quality-of-Life Update”

Patient Advocacy in Healthcare

Advocacy in healthcare is of the utmost importance, no matter what the condition! Advocate for yourself to get the care you need!

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When I was growing up, we always did what the doctor said. Why? Because he was the doctor, and the doctor always knows best.

But what if they don’t?

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