Patient Advocacy in Healthcare

Advocacy in healthcare is of the utmost importance, no matter what the condition! Advocate for yourself to get the care you need!

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When I was growing up, we always did what the doctor said. Why? Because he was the doctor, and the doctor always knows best.

But what if they don’t?

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What Once Was, Is Now Lost

This was a tough post to write last year, as I came face to face with new evidence indicated how blatantly obvious it was that I had endometriosis…yet no one helped me. It’s a story told time and again by countless women. We need prolific education. And we need a cure. 💛🎗

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While in Atlanta for my third endo-related surgery (check it out at The Day Before the Day Of and Always A Zebra), I had the privilege of being interviewed by the filmmakers behind the smashing new documentary on endometriosis called Endo What? One of the questions that Shannon Cohn, the director, asked me was if I felt betrayed by endo. For me the answer is a resounding yes, but actually explaining it is a different monster altogether.

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Do You Know Ten Women? Then You Know Endo.

We’re into the second half of Endometriosis Awareness Month! Here is a post with some basic facts and busted myths about endometriosis, and truth about how common this condition actually is. If you know ten women, you know endo!

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Part of the reason I started this blog is to raise awareness, specifically about certain medical conditions that affect me in my daily life. As I was being interviewed last week by the crew of Endo What and the memories of my endo story came flooding back as I retold it in front of the cameras, I started to think more about why awareness for this disease is so important.

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Share Your World- March 20, 2017

This will be a weekly post of the most random of random questions to answer- to share my world! Thanks to Cee’s blog for being the brainchild behind this!

How old would you be if you didn’t know how old you are? This is a very interesting question. Do I not know how old I am because I am ignorant of the concept of time? Or because I am a Time Lord? (Should I open that fob watch…?) If I were ignorant of the concept of time, I would not be any age, because I wouldn’t know that there are numbers associated with the passage of time. It would be like what heaven will be like: eternity, where time doesn’t pass, it just is. Continue reading “Share Your World- March 20, 2017”

Fly Away Home

Following up on yesterday’s post, our travels home from Atlanta after my 3rd endometriosis-related surgery.

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Read the story of my surgery in Always A Zebra!

Just a short, quick update! So how am I feeling a week post-op? Quite well, actually. You know you had a successful surgery when you are using less pain medication post-op than you were pre-op.😀

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Always a Zebra…

Oftentimes, multiple surgeries are necessary when a patient has endometriosis. When I developed pain a year after my second surgery, I thought I had scar tissue that needed another surgery to get rid of. But it turned out to be something very different…😳 Here is my account of surgery day last summer at the Center for Endometriosis Care.

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imageNote: This post spans a period of two days, covering my entire hospital stay.

Ouchie McOucherson. That’s about how I feel right now. Because surgery hurts, no matter whether it’s “just” a laparoscopy or not! But luckily I have this -> to help me. Yay for Dilaudid PCAs!

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Share Your World- March 13, 2017

This will be a weekly post of the most random of random questions to answer- to share my world! Thanks to Cee’s blog for being the brainchild behind this!

Do you push the elevator button more than once? Do you really believe it makes the elevator faster? Not usually. There was one particular elevator at work where the buttons wouldn’t light up when you pushed the button on the second floor, so sometimes I would push it more than once…just in case…and sometimes if I had to run to a code on a different floor (and trust me, the stairs would have been slower), I would be internally panicking, so I would take it out on the elevator button. And no, I don’t believe it makes the elevator faster. Continue reading “Share Your World- March 13, 2017”