It’s no secret among individuals with dysautonomia that sometimes we have trouble getting around. When your autonomic nervous system doesn’t function properly, it can make standing for a few minutes or walking a short distance seem like a few years or a thousand miles. But believe it or not, convincing a dysautonomiac to actually…
As far as health disasters go, 2017 turned out much better than 2016. No surgeries, no emergency room visits, one scan, and one procedure this year! (And those were planned.) Huzzah! However, that doesn’t mean the year was much better to get through. Virtually all of my other chronic illnesses took a back seat to symptom…
I enjoy when a new year rolls around. I feel free to try new things and get myself back on track with life in general. But to be honest, I’m quite apprehensive about 2018. We watched the ball drop in Times Square at midnight (from the comfort of our 68°F house instead of the…
A year ago today, a tumor was removed from my head. The four-hour brain surgery itself was uneventful. I woke up pretty crabby afterwards. But when you go into the OR feeling fine and wake up with the world’s worst headache and sore throat and you can’t breathe through your nose or smell anything? Not…
Backsliding. A fairly common problem among certain chronic illnesses. This phenomenon occurs so often in the world of POTS that when it happens I can barely contain myself. http://gph.is/28JAB7g I am completely over this month. I just want to take it and throw it in the trash, after stomping on it a few times….
Water and fortitude. That’s how you choke down potassium chloride tablets. Seriously, these things are huge. Alas, another medication has been added to my daily arsenal, although hopefully only temporarily. And a different new medication has been added full time for now. I finally got those 15 tubes of blood drawn and, as I knew would…
When you have a medical condition like POTS (Postural Orthostatic Tachycardia Syndrome), which affects the blood flow to your brain, or even conditions like fibromyalgia or Lyme Disease, using your brain to its fullest potential becomes a daunting and often maddeningly frustrating task. As I’ve written in the past, brain fog isn’t the occasional…
You do what you have to do. Am I right, POTSies? This has been an exceptionally bad week. So much so that I think I’ve spent most of it in bed. I say I think because I’m having a difficult time remembering right now. I’d like to be lying down in bed, but David…
Last week was another step forward in working towards some sort of improved quality of life. Meaning, I finally had that cardiac rehab (aka exercise) evaluation that I’ve been putting off. Since Dr. Wilson made such a good case for it at my appointment with him, I knew I had to try. I felt…
This will be a weekly post of the most random of random questions to answer- to share my world! Thanks to Cee’s blog for being the brainchild behind this! What is your favorite cheese? As my husband’s family hails from Wisconsin, we have an entire drawer of our refrigerator devoted solely to cheese. And when…
