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Tag: Ehlers-Danlos Syndrome

Coping with POTS

Coping with POTS

I was recently provided with a very well-written article about POTS (postural orthostatic tachycardia syndrome) by a fellow POTSie who sees the same specialist I do. The article was written by the specialist, his nurse, and some of his patients who are in the healthcare field. Please feel free to share the article with friends and family members! 😊 While I enjoyed all aspects of the article, the part that surprised me the most, mainly due to the fact that…

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Fighting Back With Love

Fighting Back With Love

Recently, I wrote a post that ended up being quite popular within the dysautonomia community. It’s actually been the most popular post I’ve written this year. I honestly have no idea why; I have read it over and over again and can’t seem to find what is so remarkable about it. When I asked my husband, even he said there was nothing profound about it. (Thanks, honey; I can always count on you to be honest. 😊) But whatever it…

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When Your Depression Is Invalidated

When Your Depression Is Invalidated

One of the worst feelings you can experience as a chronically ill person is invalidation. It’s not necessarily that others don’t believe you (although that is also a tremendous problem and a discussion for another time), but that they either don’t see or don’t understand how much your illness(es) impact your daily life. Especially when mental health plays a role in your battles. And what makes it even more frustrating? When that invalidation comes from healthcare professionals. When, to their…

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The Unpredictability of POTS

The Unpredictability of POTS

I was diagnosed with postural orthostatic tachycardia syndrome (POTS) about four months ago. (Is that all? Really? *checks calendar* Blast it all. This has been the longest four months of my life.) In a stroke of luck, my diagnosis came only a month or so after the onset of symptoms, which I inadvertently described some of here. But part of me wonders if this wasn’t the beginning, albeit still only a few weeks before things really took a more permanent turn…

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Things We Lost in the Fire

Things We Lost in the Fire

“Things we lost to the flame Things we’ll never see again All that we’ve amassed Sits before us, shattered into ash…” Things We Lost in the Fire (Bastille)   As Esther Smith said in her excellent book, When Chronic Pain and Illness Take Everything Away, “Grief is the process by which we actively release all that we feel, question, and remember at the feet of God and the people He has placed in our lives.” At the end of the second…

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Is the Future Even Possible?

Is the Future Even Possible?

via Daily Prompt: Denial I’m in denial about something. Although it’s not something you’d think any person would be in denial about. Obviously, I’m unwell. POTS has taken over my life in a bad way. I’m trying to get better, but the prognosis isn’t all that great. I may never fully recover, but I’m not in denial about it. That’s just a reality I need to accept. I’m in denial about having a baby.

Nocturnal Musings #19: The Things You Learn

Nocturnal Musings #19: The Things You Learn

I’m awake since I feel a bit sick right now. Nausea has become a fairly common occurrence during my days now, likely from all the salt tablets I’m ingesting…and all the food I’m not ingesting. I really don’t care, either. So, it’s been a bit since I really updated at all because I’ve been reblogging my endometriosis-related posts this month to spread awareness. But what else have I been up to?

Share Your World – February 27, 2017

Share Your World – February 27, 2017

This will be a weekly post of the most random of random questions to answer- to share my world! Thanks to Cee’s blog for being the brainchild behind this! Ever ran out of gas in your vehicle? No, but I had to rescue my husband one time when he did, at midnight on his birthday. He was about 1/2 mile from the gas station!

Nocturnal Musings #18: A New Me?

Nocturnal Musings #18: A New Me?

I haven’t done one of these in awhile. My last one was in December, I believe. Even in two short months, my life has changed a great deal. Not for the better, unfortunately. And since I’m having some painsomnia along with my general refusal to sleep at night for the most part anymore, I guess I may as well talk about it to some more sympathetic ears than I’ve been getting the past few days. I lost my job last…

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