Today is my two-year endo-versary! What the heck is that? It’s been two years to the day since I underwent excision surgery at the Center for Endometriosis Care (CEC) in Atlanta, by the awesome Dr. Sinervo!
You may be thinking, isn’t it kind of silly to celebrate the anniversary of a surgical procedure? In a word…no. Wouldn’t a patient in heart failure celebrate the anniversary of the day they received a heart transplant? That’s what it’s like for those of us with endometriosis. The day you have skilled excision (because not all excision is created equal) is like getting a new heart. It puts you back on track to living a normal life again. Perhaps that sounds overdramatic to many of you. But until you have experienced the level of disability and pain that endometriosis can cause, you won’t truly understand what it’s like to be freed from the chains of this disease. Continue reading “Happy Endo-Versary!”
The person I was a year ago is not the person I am now. Not by a long shot. Even though I’m only a year older, I feel as though I’ve aged at least ten years in the past year. Must be a thing that happens once you hit your 30s.
When I look in the mirror now, I can see the scars that the past year has left on me, both literally and figuratively. I see a person who is a shell of what she once was and doesn’t know if she can ever go back to before. Continue reading “A Cold and Broken Birthday Hallelujah”
I don’t understand. I’m out of commission. Again. And to say I’m frustrated is a gross understatement.
I feel defeated. I feel worthless. I feel useless. But most of all, I feel angry. Continue reading “Relapse”
The time has come. Here it is, October 23, 2016. My last day of a four and a half month long medical leave. 136 days, to be exact.
Most of those days were spent in bed. I would be sitting up for the most part, blogging or writing or reading my Bible, but I had to stay in bed because dizziness could come upon me so quickly, I had to be able to lie down immediately if a dizzy spell happened. That occurred more times than I care to think about. Continue reading “The End of an Era”
via Daily Prompt: Subdued
This is a republish from a month ago…I published it and then it somehow unpublished itself back into my drafts…so here’s a post from the middle of October!
I’ve been quite subdued this week. The Google definition of subdued is “quiet and rather reflective or depressed.” I really can’t think of a better word to describe my state of being at the moment. Continue reading “Subdued”
Why should I feel guilty about something I can’t control? That’s what part of my mind says. But the part that actually controls my feelings completely overrides that. This is in part due to experiences I’ve had that have made me feel guilty, whether the feelings were actually warranted or not.
Individuals with chronic illnesses shouldn’t be made to feel guilty about their conditions. After all, cancer patients aren’t shamed for having cancer, are they? There was nothing they could do to prevent it. In the same way, women with endometriosis shouldn’t be made to feel guilty for having this unpreventable disease.
I was diagnosed with endometriosis two and a half years ago, although my symptoms had actually started fourteen years prior to that time. Even in the relatively short period of time since my diagnosis, through my own personal experiences and time spent in Facebook support groups, I have seen firsthand the guilt that is placed on us…and all due to a disease we cannot control. Continue reading “The Guilt of Living with Endometriosis”
My health insurance company is going to hate me by the time this year is over. Fingers crossed that this means next year will be a tamer year as far as medical procedures go.
Yesterday I had my appointment with Dr. Bain, the neurovascular surgeon my case was referred to at the end of August when my pre-op imaging revealed a 4-5 mm aneurysm on my internal carotid artery, right next to my pituitary tumor. It was a fantastic appointment; I have never felt so comfortable about my options as I do now after spending half an hour talking with Dr. Bain. Continue reading “It’s Not Over”