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With Water and Fortitude

With Water and Fortitude

Water and fortitude. That’s how you choke down potassium chloride tablets. Seriously, these things are huge. Alas, another medication has been added to my daily arsenal, although hopefully only temporarily. And a different new medication has been added full time for now. I finally got those 15 tubes of blood drawn and, as I knew would happen, my potassium is low, because me. And because it’s a side effect of the Florinef that I was fully expecting, even after only two weeks…

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An Exercise Plan For A POTSie

An Exercise Plan For A POTSie

Last week was another step forward in working towards some sort of improved quality of life. Meaning, I finally had that cardiac rehab (aka exercise) evaluation that I’ve been putting off. Since Dr. Wilson made such a good case for it at my appointment with him, I knew I had to try. I felt a bit crappy in the morning, so I’m glad my dad was here to be able to take me. We weren’t sure how much the test…

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A POTSie Life For Me

A POTSie Life For Me

Yesterday was a very overwhelming day, but I’m going to try my best to make it somewhat comprehensible. After six months of waiting (seriously, I scheduled this appointment in January), I finally had my appointment with Dr. Wilson. He’s a neurologist who specializes in POTS and has patients come from all over the country to see him. And now it was finally my turn!

Share Your World: June 12, 2017

Share Your World: June 12, 2017

This will be a weekly post of the most random of random questions to answer- to share my world! Thanks to Cee’s blog for being the brainchild behind this! What do you do when you’re not working? If you are retired, what do you that is not part of your regular daytime routine? Due to my illnesses, I am unable to work at the age of 31. I hate it and I’m ashamed of it. And I have no children to…

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The Last Shift

The Last Shift

If you’ve been following my blog since before October 2016 or so, you might remember that I attempted to return to work on October 24th, six weeks after my brain surgery. You may also remember that it was a complete disaster and I have been unable to work since. But since that was a one-off failure, I don’t count that day as my last day of work. The day that gets that designation in my book is June 10th. That’s…

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Is My Illness My Fault?

Is My Illness My Fault?

For me, 2016 was the year of the surgeries and bizarre diagnoses. Three surgeries, to be exact, spanning over a period of four months. Once the surgeries were over, I thought that once I had an adequate recovery period, I would be back to normal. I’d be able to return to work, from which I’d had to take an extended leave of absence, and I could put the entire year behind me as a gargantuan fluke. But it was not…

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When Your Depression Is Invalidated

When Your Depression Is Invalidated

One of the worst feelings you can experience as a chronically ill person is invalidation. It’s not necessarily that others don’t believe you (although that is also a tremendous problem and a discussion for another time), but that they either don’t see or don’t understand how much your illness(es) impact your daily life. Especially when mental health plays a role in your battles. And what makes it even more frustrating? When that invalidation comes from healthcare professionals. When, to their…

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The Unpredictability of POTS

The Unpredictability of POTS

I was diagnosed with postural orthostatic tachycardia syndrome (POTS) about four months ago. (Is that all? Really? *checks calendar* Blast it all. This has been the longest four months of my life.) In a stroke of luck, my diagnosis came only a month or so after the onset of symptoms, which I inadvertently described some of here. But part of me wonders if this wasn’t the beginning, albeit still only a few weeks before things really took a more permanent turn…

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Rebellion Gone Wrong

Rebellion Gone Wrong

I’m not quite sure I’ve gone this long without updating my blog before, even after my multiple surgeries last year. This week has been a weird one, though, and I just haven’t felt like writing. Probably because of my rebellion that kind of ended up going sideways. Hubby was out of town presenting at an emergency medicine conference in Orlando, so I’ve been alone with the cats all week. They’re used to me being home all the time, but not…

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