An Introduction to ribbonrx.com

An Introduction to ribbonrx.com

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Hi there! Welcome to my blog, 💛ribbonrx! I thought I would do a brief introduction so you know what you can expect to find here.

The goal of this blog is to give a voice to issues that are near and dear to my heart (meaning, issues I suffer from) that need a louder voice. Topics covered include:

  • Endometriosis (visit Yellow for Endometriosis, my specific page for endo information, resources, and links to my blog posts)
  • Adenomyosis
  • Celiac disease
  • Depression *some trigger warnings provided on these posts*
  • Self harm *trigger warnings provided on these posts*
  • Migraines
  • Infertility
  • Social anxiety
  • Chronic pain
  • Stigmas surrounding mental health and chronic pain
  • Pituitary tumors (specifically prolactinomas)
  • Dysautonomia
  • Postural Orthostatic Tachycardia Syndrome (POTS)
  • Ehlers-Danlos Syndrome Hypermobility Type (hEDS) or, as my geneticist said, an “unspecified connective tissue disorder,” so perhaps on the range of Hypermobility Spectrum Disorders (HSD) based on the newly released 2017 diagnostic criteria.
  • Being a spoonie

I also randomly blog about cats, books, dance, and other fun things.

ï’›A man and woman wearing graduation cap and gown with doctorate hoods holding hands walking down a sidewalk away from the camera. The grass is green and the sky is clear blue.

I hope here you find support and helpful information regarding these illnesses. Welcome and enjoy!

💛ribbonrx

 

13 thoughts on “An Introduction to ribbonrx.com”

  2. You are incredible! I have all of the same illnesses..plus Crohn’s Disease, chronic migraines, mixed connective tissue disease & then some..I feel such a kinship with you! I’m also a patient advocate & health educator writing a book on the spoonie life–I’d LOVE to include you!

    Reply

    1. Wow, thank you so much! Sounds like we have a lot in common, for the most part. I’d be honored to help you out with your book in whatever way you want! Thank you!

      Reply

  3. *squee* I nominated you for the One Lovely Blog Award! See my post from today’s date for the info and rules – if you do that kind of thing. Thank you for such an incredibly informative blog. <3 ~Lisa

    Reply

  5. Laura, you are a talented writer. Consider more writing opportunities, short stories, children’s books. You will be helping others in ways yet unknown. You would also be good at editing pharma journals or English as a second language scientific writing and would receive financial remuneration for your work. The opportunities await someone with your skill set. Seek out some of the opportunities to serve on editorial boards or a reviewer for Pharmaceutical journals. You have the requisite knowledge and writing skill which is a needed combination.
    It would also keep you current on the literature in your area of expertise. You are valued ! Pam

    Reply

  6. Just pinned your fantastic article about seeing Dr Wilson.
    That was a great article. I wanted to leave info on low dose naltrexone 4.5 mg. I am certain that you are aware of
    it. I recently heard Dr Leonard
    Weinstein a gastroenterologist
    in St Louis be interviewed on
    LDN Radio UK & say he gives
    LDN 4.5 mg to some of his
    14 POTS patients. He has a special interest in it from a
    relative of his. I am on ldn 4.5 mg for fibromyalgia from Jared
    Younger’s LDN/Fibro study
    @ Stanford- now @ UAB.
    God Bless You

    Reply

    1. Thank you for that information! I’ve heard of LDN in other conditions (I’m a pediatric pharmacist), but not so much in POTS. I know fibro is different than POTS, but do you find that the LDN helps you? Best wishes to you! ?

      Reply

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