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Tag: misdiagnosis

What Once Was, Is Now Lost

What Once Was, Is Now Lost

While in Atlanta for my third endo-related surgery (check it out at The Day Before the Day Of and Always A Zebra), I had the privilege of being interviewed by the filmmakers behind the smashing new documentary on endometriosis called Endo What? One of the questions that Shannon Cohn, the director, asked me was if I felt betrayed by endo. For me the answer is a resounding yes, but actually explaining it is a different monster altogether.

You Have What In Your Where?

You Have What In Your Where?

I don’t know when or how I first developed endometriosis. No one really knows, as most women fight through years of misdiagnosis after misdiagnosis before finally, after ten years or so, landing on the correct diagnosis. Theories abound regarding how this disease arises, from an outdated theory by a guy named Sampson to more recent and scientifically based theories involving stem cells and other genetic factors. For a complete, authoritative review on endometriosis, I have found this article from the Center for…

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