A POTSie Life For Me

Yesterday was a very overwhelming day, but I’m going to try my best to make it somewhat comprehensible.

After six months of waiting (seriously, I scheduled this appointment in January), I finally had my appointment with Dr. Wilson. He’s a neurologist who specializes in POTS and has patients come from all over the country to see him. And now it was finally my turn! Continue reading “A POTSie Life For Me”

Nocturnal Musings #23: Out of Hell

I have to go there today.

That place.

That hospital of which I am deeply afraid.

For a follow-up visit with my endocrinologist to check my prolactin to make sure my tumor is still in check, even though my MRI from two months ago (7 months post-op) was clear.

I can already smell the smells. Starbucks, of all things. Alcohol wipes. Plastic tubing. Fluid bags from patients going for walks. I can smell a TPN fifty yards away. Occupational hazard.

I can already see the blindingly white walls and stainless steel everything that provide zero comfort to a terrified patient. And possibly a need for sunglasses.

I can already hear the ever-present music that is supposed to be soothing playing over hidden speakers. Continue reading “Nocturnal Musings #23: Out of Hell”

Share Your World: June 26, 2017

This will be a weekly post of the most random of random questions to answer- to share my world! Thanks to Cee’s blog for being the brainchild behind this!

What goal are you working on now? Your goal can be something fun or extremely serious. Have fun with this question. Trying to live as normal a life as possible given my chronic illnesses. It’s become more of a challenge as time goes on. I hate the term “new normal” because there’s nothing normal about the way my illnesses are making me live, so I’m trying to not look at it that way. Continue reading “Share Your World: June 26, 2017”

A Good Thing

That place still traumatizes me.

Wait, back up. I should start at the beginning.

Yesterday it was finally time for my 7-month MRI following my brain tumor removal last September (and my 7th lifetime MRI at that!) My mom came down a few days ago to spend some time with me while my husband was out of town, and to drive me to my appointments.

I was already stressed out about the day because of the timing. My MRI was scheduled for 9:20 am at a nearby family health center. Originally, my appointment with my neurosurgeon was at 11:40 am at main campus, but last week it was changed to 9:40 am. The office called me and told me it was ok to get there as soon as I could after the MRI. Ok, then…but it still stressed me out because if there is one thing I can’t stand, it’s tardiness. Continue reading “A Good Thing”

Nocturnal Musings #19: The Things You Learn

I’m awake since I feel a bit sick right now. Nausea has become a fairly common occurrence during my days now, likely from all the salt tablets I’m ingesting…and all the food I’m not ingesting. I really don’t care, either.

So, it’s been a bit since I really updated at all because I’ve been reblogging my endometriosis-related posts this month to spread awareness. But what else have I been up to? Continue reading “Nocturnal Musings #19: The Things You Learn”