Endometriosis is a challenging disease. Not only is it poorly understood in the medical arena, but most people in general have never even heard of it. Yet it affects 1 in 10 women worldwide and can take up to ten years, or longer, to be properly diagnosed. Symptoms can be debilitating, and women may have to endure multiple surgeries to find relief. The gold standard and best treatment available, surgical excision, is challenging for many women to have access to, due to insurance issues, geography, and the sheer lack of skilled and experienced surgeons who are able to perform this meticulous surgery.
So what can you do if you have a loved one who is diagnosed with this life-altering disease? Continue reading “How to Support a Loved One Who Has Endometriosis”
This is the first time I have done one of WordPress’s Daily Word Prompt Challenges, so I hope I am doing it correctly. Today’s word is profound, and *cue the cheese* it had a profound effect on me.
I, and 176 million other women on this planet we call Earth, suffer from a disease called endometriosis. That number equals out to about 1 in 10 women. So let’s say you know about 100 women. That means 10 of them have endometriosis whether they know it or not. But it’s a disease almost no one has heard of. How can this be? Because it’s a “below-the-waist” issue, which has been an area of the female body that people feel ashamed to talk about due to cultural taboos that exist to this day. So what? Let’s talk about it. Continue reading “Endometriosis: A Profound Effect on the Women of our World”
Dear Little 💛ribbonrx,
This is you, from the future. I know that seems kind of strange, but I wanted to give you this special opportunity, brought to you by an alien known as The Doctor (see that Blue Police Box in the backyard?) to let you know that everything is going to be ok and to tell you about something really important. Continue reading “A Letter to the 12-year-old me, who doesn’t know she has endo…”
I sat on the toilet in our hotel room, slumped over with my chest on my thighs, desperately wishing it would end so I could get some sleep. Alas, no sleep would come until I was rendered unconscious in the OR by the mechanisms of modern medicine. Continue reading “The Gold Standard”
Where does anyone in the 21st century turn to for information? The Internet, of course. Which takes us back to where we left off at the end of my last post. Hopeless, in more pain every day than anyone should have to endure, and looking for support from people who could relate to what I was going through. Continue reading “Know Your Enemy”