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Tag: dysautonomia

An Exercise Plan For A POTSie

An Exercise Plan For A POTSie

Last week was another step forward in working towards some sort of improved quality of life. Meaning, I finally had that cardiac rehab (aka exercise) evaluation that I’ve been putting off. Since Dr. Wilson made such a good case for it at my appointment with him, I knew I had to try. I felt a bit crappy in the morning, so I’m glad my dad was here to be able to take me. We weren’t sure how much the test…

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Share Your World: July 17, 2017

Share Your World: July 17, 2017

This will be a weekly post of the most random of random questions to answer- to share my world! Thanks to Cee’s blog for being the brainchild behind this! What is your favorite cheese? As my husband’s family hails from Wisconsin, we have an entire drawer of our refrigerator devoted solely to cheese. And when I say drawer, I mean the extra drawer in between the French doors of the fridge and the pullout freezer, so it’s as wide as the…

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Coping with POTS

Coping with POTS

I was recently provided with a very well-written article about POTS (postural orthostatic tachycardia syndrome) by a fellow POTSie who sees the same specialist I do. The article was written by the specialist, his nurse, and some of his patients who are in the healthcare field. Please feel free to share the article with friends and family members! ? While I enjoyed all aspects of the article, the part that surprised me the most, mainly due to the fact that…

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A POTSie Life For Me

A POTSie Life For Me

Yesterday was a very overwhelming day, but I’m going to try my best to make it somewhat comprehensible. After six months of waiting (seriously, I scheduled this appointment in January), I finally had my appointment with Dr. Wilson. He’s a neurologist who specializes in POTS and has patients come from all over the country to see him. And now it was finally my turn!

Share Your World: July 10, 2017

Share Your World: July 10, 2017

This will be a weekly post of the most random of random questions to answer- to share my world! Thanks to Cee’s blog for being the brainchild behind this! How do you like to spend a rainy day? Strangely enough, today is a rare (as of late) rainy day! Which makes me so happy because I honestly prefer rainy days to sunny ones; it’s the migraineur in me. As I don’t work anymore, one day is not any different from the…

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…That Surpasses Understanding

…That Surpasses Understanding

For the past week or so, something has been happening to me that I can’t explain. My sleep has been a bit off-kilter, although this isn’t unusual. Since I don’t work anymore, my circadian rhythm somewhat resembles this: Anyway, on some days, I’ve found myself awake very early, between 4 and 5 am, unable to sleep anymore. Ok, whatever. Not a big deal. But once the sun comes up, it starts. A near-skin-tingling anxiety that has me pacing, sitting on…

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Nocturnal Musings #23: Out of Hell

Nocturnal Musings #23: Out of Hell

I have to go there today. That place. That hospital of which I am deeply afraid. For a follow-up visit with my endocrinologist to check my prolactin to make sure my tumor is still in check, even though my MRI from two months ago (7 months post-op) was clear. I can already smell the smells. Starbucks, of all things. Alcohol wipes. Plastic tubing. Fluid bags from patients going for walks. I can smell a TPN fifty yards away. Occupational hazard. I can…

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Share Your World: June 26, 2017

Share Your World: June 26, 2017

This will be a weekly post of the most random of random questions to answer- to share my world! Thanks to Cee’s blog for being the brainchild behind this! What goal are you working on now? Your goal can be something fun or extremely serious. Have fun with this question. Trying to live as normal a life as possible given my chronic illnesses. It’s become more of a challenge as time goes on. I hate the term “new normal” because there’s…

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Friends, Can You Help Me?

Friends, Can You Help Me?

I’ll try to keep this short and sweet so as to not burden anyone. I need help from you, my faithful readers. The brain fog caused by one of my medical conditions, POTS, a form of dysautonomia, has made it monumentally difficult for me to think. It’s like…my thoughts won’t connect, or certain parts of my brain won’t talk to each other. I can almost feel this void in the middle of my head, like a bridge is out over…

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