Share Your World: June 12, 2017

Share Your World: June 12, 2017

This will be a weekly post of the most random of random questions to answer- to share my world! Thanks to Cee’s blog for being the brainchild behind this!

What do you do when you’re not working? If you are retired, what do you that is not part of your regular daytime routine? Due to my illnesses, I am unable to work at the age of 31. I hate it and I’m ashamed of it. And I have no children to take care of because my body is a traitor. So what do I do now? I write, both on my blog and in my journal. I read. I listen to music. That’s it.

What would you do if you won the lottery? Pay off our mortgage, although we currently only have a little under 11 years to go. Then I would probably sponsor about two dozen children through Compassion International. (I currently sponsor two teenage girls, one in Rwanda and one in Peru, and it’s the greatest gift ever.) We used to sponsor a child in Honduras, but she’s all grown up now. At least we got to visit her. 😊 I’d also want to sponsor more Child Survival Programs; we currently sponsor one in Uganda. And maybe we can finally get the double oven my husband has wanted for the last six years that keeps getting put off by more urgent projects. Every time we make a necessary large purchase, he says, “There goes my double oven again.” Yes, dear.

What makes you laugh the most? Thinking about this, I’ve realized I don’t laugh anymore. My husband laughs all the time, but when he shows me what he’s laughing at, I just stare at it and can’t figure out why it’s funny. My life is that sad.

What is your biggest pet peeve with modern technology? Speaking specifically of technology used in healthcare, that it’s causing people to lose vigilance; relying too much on what the computer says than what is common sense. And the assumption that more technology automatically makes things “safer.” Nothing substitutes a manual check by a human being.

Optional Bonus question: What are you grateful for from last week, and what are you looking forward to in the week coming up? I’m grateful that I actually had a really good week last week. I got more work done around the house than I have in months and my symptoms weren’t overly horrendous. But I’m ultimately grateful for a functional central air conditioner. It broke two years ago at the very start of summer (well, it was 18 years old) and we went that whole summer without AC, which was only really torture a few times. We had it replaced that fall, along with the furnace. But I couldn’t survive the summer heat now without it, since the heat makes my POTS symptoms exponentially worse. It’s currently 88*F (31*C) outside.

This week we hope to open our pool, since it seems summer has finally arrived. Even though I hate opening, it’s pretty much routine now. But the biggest challenge is going to be replacing the 200 lbs of sand in the filter, which we’ve never done before as we’ve only lived here for six years. God help us.

💛ribbonrx

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