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The Year After Brain Surgery

The Year After Brain Surgery

A year ago today, a tumor was removed from my head. The four-hour brain surgery itself was uneventful. I woke up pretty crabby afterwards. But when you go into the OR feeling fine and wake up with the world’s worst headache and sore throat and you can’t breathe through your nose or smell anything? Not to mention the constant run of blood and gunk draining out of your nose and down your throat, enough to make you unpleasantly sick. That’s enough…

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Six Things I Wish I’d Known About Endometriosis

Six Things I Wish I’d Known About Endometriosis

If you’ve followed my blog for any period of time, you’re likely familiar with the fact that I have endometriosis. To be honest, of all my chronic illnesses, it’s the one I feel most passionate about. Despite being a very common condition, it’s not one for which education is exactly stellar. It’s a disease most people have never heard of. When a diagnosis of endometriosis is given to a woman, most of the time she has no idea what it is…

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Backsliding: POTS Edition

Backsliding: POTS Edition

Backsliding. A fairly common problem among certain chronic illnesses. This phenomenon occurs so often in the world of POTS that when it happens I can barely contain myself. I am completely over this month. I just want to take it and throw it in the trash, after stomping on it a few times. Thank goodness there’s only a week left. The Potassium Around the beginning of the month, I started on potassium supplementation. Why?

With Water and Fortitude

With Water and Fortitude

Water and fortitude. That’s how you choke down potassium chloride tablets. Seriously, these things are huge. Alas, another medication has been added to my daily arsenal, although hopefully only temporarily. And a different new medication has been added full time for now. I finally got those 15 tubes of blood drawn and, as I knew would happen, my potassium is low, because me. And because it’s a side effect of the Florinef that I was fully expecting, even after only two weeks…

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An Exercise Plan For A POTSie

An Exercise Plan For A POTSie

Last week was another step forward in working towards some sort of improved quality of life. Meaning, I finally had that cardiac rehab (aka exercise) evaluation that I’ve been putting off. Since Dr. Wilson made such a good case for it at my appointment with him, I knew I had to try. I felt a bit crappy in the morning, so I’m glad my dad was here to be able to take me. We weren’t sure how much the test…

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A POTSie Life For Me

A POTSie Life For Me

Yesterday was a very overwhelming day, but I’m going to try my best to make it somewhat comprehensible. After six months of waiting (seriously, I scheduled this appointment in January), I finally had my appointment with Dr. Wilson. He’s a neurologist who specializes in POTS and has patients come from all over the country to see him. And now it was finally my turn!

Share Your World: June 12, 2017

Share Your World: June 12, 2017

This will be a weekly post of the most random of random questions to answer- to share my world! Thanks to Cee’s blog for being the brainchild behind this! What do you do when you’re not working? If you are retired, what do you that is not part of your regular daytime routine? Due to my illnesses, I am unable to work at the age of 31. I hate it and I’m ashamed of it. And I have no children to…

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The Last Shift

The Last Shift

If you’ve been following my blog since before October 2016 or so, you might remember that I attempted to return to work on October 24th, six weeks after my brain surgery. You may also remember that it was a complete disaster and I have been unable to work since. But since that was a one-off failure, I don’t count that day as my last day of work. The day that gets that designation in my book is June 10th. That’s…

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Is My Illness My Fault?

Is My Illness My Fault?

For me, 2016 was the year of the surgeries and bizarre diagnoses. Three surgeries, to be exact, spanning over a period of four months. Once the surgeries were over, I thought that once I had an adequate recovery period, I would be back to normal. I’d be able to return to work, from which I’d had to take an extended leave of absence, and I could put the entire year behind me as a gargantuan fluke. But it was not…

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