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Dysautonomia: Products That Saved Me In 2017

Dysautonomia: Products That Saved Me In 2017

As far as health disasters go, 2017 turned out much better than 2016. No surgeries, no emergency room visits, one scan, and one procedure this year! (And those were planned.) Huzzah! However, that doesn’t mean the year was much better to get through. Virtually all of my other chronic illnesses took a back seat to symptom management of dysautonomia, specifically Postural Orthostatic Tachycardia Syndrome (POTS). Dysautonomia is one of those conditions that affects everyone differently. (Though in reality, most chronic illnesses share…

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Dear 2018: Please Be Gentle

Dear 2018: Please Be Gentle

I enjoy when a new year rolls around. I feel free to try new things and get myself back on track with life in general. But to be honest, I’m quite apprehensive about 2018. We watched the ball drop in Times Square at midnight (from the comfort of our 68°F house instead of the 10°F outdoors). As we toasted each other with champagne, David pointed out that even-numbered years tended to be better for him. It was then that I…

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Stab Me In My Groin, or A Follow-Up Angiogram

Stab Me In My Groin, or A Follow-Up Angiogram

I’ve been trying to write a blog post for the past few weeks. I’ve started at least five posts, gotten a paragraph or two in, and then stopped. My brain just won’t work long enough to keep going. So since I can’t think of anything creative to write, I’ll just write the facts regarding my angiogram last month. I can do facts, right? Maybe that’ll be interesting to some people? If you’ve been following my blog for at least a…

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The Year After Brain Surgery

The Year After Brain Surgery

A year ago today, a tumor was removed from my head. The four-hour brain surgery itself was uneventful. I woke up pretty crabby afterwards. But when you go into the OR feeling fine and wake up with the world’s worst headache and sore throat and you can’t breathe through your nose or smell anything? Not to mention the constant run of blood and gunk draining out of your nose and down your throat, enough to make you unpleasantly sick. That’s enough…

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Backsliding: POTS Edition

Backsliding: POTS Edition

Backsliding. A fairly common problem among certain chronic illnesses. This phenomenon occurs so often in the world of POTS that when it happens I can barely contain myself. I am completely over this month. I just want to take it and throw it in the trash, after stomping on it a few times. Thank goodness there’s only a week left. The Potassium Around the beginning of the month, I started on potassium supplementation. Why?

With Water and Fortitude

With Water and Fortitude

Water and fortitude. That’s how you choke down potassium chloride tablets. Seriously, these things are huge. Alas, another medication has been added to my daily arsenal, although hopefully only temporarily. And a different new medication has been added full time for now. I finally got those 15 tubes of blood drawn and, as I knew would happen, my potassium is low, because me. And because it’s a side effect of the Florinef that I was fully expecting, even after only two weeks…

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Share Your World: August 7, 2017

Share Your World: August 7, 2017

This will be a weekly post of the most random of random questions to answer- to share my world! Thanks to Cee’s blog for being the brainchild behind this! What was the last URL that you bookmarked or saved? The login page to what will be my new, updated blog! I am transferring to a self-hosted site. It’s time to expand my blog and bring it to a higher level and the good people at WordPress are doing the full transfer…

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Planning Through the Brain Fog

Planning Through the Brain Fog

When you have a medical condition like POTS (Postural Orthostatic Tachycardia Syndrome), which affects the blood flow to your brain, or even conditions like fibromyalgia or Lyme Disease, using your brain to its fullest potential becomes a daunting and often maddeningly frustrating task. As I’ve written in the past, brain fog isn’t the occasional forgetfulness that us sleep-deprived adults have to deal with. And it’s not just “getting old” (I’m 31, for heaven’s sake!) Sometimes I can’t even remember things…

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Nocturnal Musings #24: 4 am Pizza

Nocturnal Musings #24: 4 am Pizza

You do what you have to do. Am I right, POTSies? This has been an exceptionally bad week. So much so that I think I’ve spent most of it in bed. I say I think because I’m having a difficult time remembering right now. I’d like to be lying down in bed, but David is so exhausted from working both his regular job and security for the Pro Football Hall of Fame events over the past several days that he’s…

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Inside the Mind of a Sick Person

Inside the Mind of a Sick Person

“What do sick people think about? How do you know when you start to be a sick person?” This statement by author Nina Riggs in her memoir, The Bright Hour, was spoken when she woke up one morning shortly after she was diagnosed with breast cancer. When I read it, it gave me pause. I tried to remember if I had ever had a similar thought and couldn’t locate one anywhere in my memory, although that’s not saying much nowadays….

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